[tri-med] Re: fundo/peg questions

(Our daughter Kelly (T13) who
just turned 3 last week just had swallow and GI tests that showed aspiration
and reflux. A fundo and peg/feeding tube is being recommended)
Hi Valerie,

Nicholas had a fundo done when he was 6 years old due to reflux.  We tried 
meds...it helped a little.    When he had the upper GI test, it showed a 
malrotated bowel.  So, they decided to do surgery right away for the malrotated 
bowel and also did the fundo at the same time.  Since it was a more involved 
surgery, Nick had an epidural for 3 days.  He was very comfortable.  Then we 
went on the hernia roller coaster!  The surgery weakened his abdominal area and 
he had 4 hernia surgeries.  We finally took him to St. Louis Children's and 
they put an Alloderm patch in (natural patch not synthetic).  So far, so good.  
The g-tube was the best thing we did.  If he's sick or falls asleep before 
supper, I just give it to him by tube!
.
Happy 3rd birthday Kelly.  Send me a picture of Kelly please!

Jayne - mom to Nicholas - T-13 - 8 yrs old
Hudson IL     
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: