[tri-med] Re: for the purpose...they are perfect

Rebecca saw the Doc 32 hrs before she died, she thought it was her
ears...........coroner said she had pneumonia...................



((((oh Susan)))

One of the things that I have noticed with my Bec is that she doesn't cough
much, even with pneumonia...the doctors and nurses ask me about wheezing or
whistling, signs of difficulty breathing both of which would only happen if
she was actually trying harder to breathe or moving air forcefully which she
doesn't. Some of our kids don't show enough of the typical symptoms and it
takes significant detective work and lots of pessimism, you know,
expecting/assuming and looking for worst when usually we try to tell
ourselves to focus on the positive and assume the best.

Rebecca's doctor may get a failing grade, #1 for not listening to you. You
took her in because you were concerned and new something was wrong and
needing treating and they didn't listen to you. BUT please know that YOU
always did your very best for Rebecca.

Catherine, mom of Becky (Trisomy 13 Mosaic)






                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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