[tri-med] for Rohaizah with a big hug!!!

Dear Rohaizah,
  I am very sorry for you.
  We too had a prenatal diagnosis at 18 weeks of Trisomy 18 for our son.
  I was scared, terrified, upset, sad, angry,and spent many days on the 
internet looking for answers.
  We confirmed his diagnosis with amniocentesis and had many repeat ultrasounds.
  these tests all confirmed the diagnosis.
  I agree with many people on this site, you need to do some deep soul 
searching, have long talks with your husband, get grief counseling from a GOOD 
counselor/psychologist.
  Don't try to do this alone
  I can only share with you our experience...
  Abortion was never an option for us, so we set out on the long road of 
bonding with our son.
  Mitchell died 6 weeks ago, He was 39 weeks and died in utero.
  Every trisomy situation is different, some babies die in utero, some die 
shortly after birth, and some live.
  I will share with you that because we decided to love our son and share him 
with family and friends and carry him to term, we have been blessed so many 
times and so many people have been touched by mitchells short life I wouldn't 
change my decision!!!
  Our faith carried us through and God blessed us and Mitchell
  I might recc another website for you.
  Children who die and children who are handicapped are special spirits and 
they teach us more than we think about life.
  WWW.prenatalpartnersforlife.com
  www.karlkohlase.com
  
Our prayers are with you, write any time you need to chat
  jenn
salleh rohaizah <rohai1964@xxxxxxxxx> wrote:
  Hi,
I am a new member to this group. I am from Malaysia. I am 19 weeks pregnant and 
I was told by my doctor 2 days ago that my baby is having edwards syndrome. The 
doctor told me that the chance for the baby to survive is very minimal. She 
asked me whether I want to continue the pregnancy or just terminate the 
pregnancy. I am so confuse right now! I might feel guilty if i terminate the 
pregnancy as i can feel the baby moving in my tummy ; i already feel the bond 
between me and the baby and of course I love him so much! But at the same time 
i also don't want the baby to suffer after his birth. 
I know some of u might have baby with the syndrome. may I know how is it 
dealing with this baby during their birth ... does it mean that my baby will 
have to be in the hospital for the rest of his life? How do u feel to see your 
baby suffer with many complications? ... please share with me your experience 
as it might help me to make my decision. 
The doctor gives me 1-2 weeks to make up my mind. I really need your response 
and advise.

Thank u very much.

Rohaizah Salleh




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Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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