[tri-med] Re: feeding tube question from a former list member

I'd also like to hear from Holly about her experience with tube feeding.
Didn't Morgan have a tube, then have it removed once he didn't need it anym=
ore?

Moms (like me) often have concerns that once the tube goes in, it may
never come out, and when a baby feeds orally already, it is like a
step backwards to put one in.

Debbie, mom to Baby Claire (T18)
http://www.debbwebb.com/Claire/

On 10/27/05, Loren Warnemuende <lorenwarn@xxxxxxxxx> wrote:
> Hi all!
>
> I'm sure many of you remember Mimi and her daughter Tierney (T18) who
> were on the list a year or so ago.  They had to take time off due to
> extra stresses (Mimi's son Keegan was diagnosed with leukemia).
> Anyway, I just got this email from her and thought I'd pass it on to
> you.  I'll forward any responses to the list on to Mimi.
>
> (Brief family update:  Keegan is trucking along--I believe he's in
> remission right now, but it's one of those things they have to keep
> watching.  Tierney is 2 1/2 now and just beautiful!  The rest of the
> family is well, but they were all displaced over the summer as major
> construction was going on down the street from their house, and they
> were concerned about Keegan lowered immune system.  They hope to be
> back in their home by December.)
>
> Here's the note:
>
> Begin forwarded message:
> > Date: Wed Oct 26, 2005  2:59:30 PM America/Detroit
> > Subject: feeding tube
> >
> > Hi Loren,
> >
> > Hope you, Kraig and the kids are doing well. In spite of the drought,
> > we are having a colorful Fall.
> >
> > We are doing alright here. Can NOT wait to get back in to our house.
> >
> > Tierney is doing fine but I am, at long last, going forward with a G
> > tube for her.  She is not gaining weight, in spite of the fact that I
> > spend over 4 hours a day feeding her. She loses ground when she is
> > sick--the stress of getting food in to her her is just so high. I am
> > still pumping breastmilk for her and I have lately been trying to
> > transition her on to some pediasure mixed with my breastmilk. She is
> > very resistant, and I am just not sure how long I can go on pumping
> > for 2 hours a day to meet her needs. Honestly, I am not--she is
> > gaining and losing the same ounce month after month.
> >
> > Long story short, I was hoping you or perhaps someone on the list
> > could give me the lowdown on feeding tube options so I can go in
> > educated. I have heard that the Mickey is low profile and pretty easy
> > to use. Tierney is active and opinionated enough that I think she will
> > pull at something that sticks up much.
> >
> > I have some experience with G tubes as I place them in dogs and
> > cats--but ours are designed to be temporary and somewhat cumbersome to
> > use.
> >
> > Also--what tests did Keren have to have done prior to her G tube
> > placement? I hate tests.
> >
> > Thanks a million Loren. This has been a long time coming and I am
> > anxious to make Tierney's feedings more successful and less stressful.
> >
> > Love, Mimi
> >
>
> Loren (wife to Kraig, mom to Keren Elyse, T18, 3 years old! (9/27/02),
> and Clarissa Joanne (7/17/05) )
> Southeast Michigan
> http://webpages.eng.wayne.edu/~ad6075
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


--
Time flies when your having rum.
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the impossib=
le!
If you want the rainbow, you gotta put up with the rain.
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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