[tri-med] Re: feeding problems

Matthew has feeding issues as well. Hes not tube fed but hes almost 4 and he
will not eat. We are carrying Matthew to Richmond Childrens
Hopital-Behavorial Feeding Problems. His first appt is July 1. Im so looking
foward to it. I'm kinda at wits end myself when he wont eat.

Cheryl (Wife to Jason, Mom to Matthew and our two new pups. boo and too.)
----- Original Message -----
From: <Kjejohns@xxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, June 19, 2002 10:55 PM
Subject: [tri-med] feeding problems


> Hi Everyone!  Just wanted to send a blurb about a conference I just
attended
> called Picky Eaters vs. Problem Feeders  - Assessment and Treatment using
the
> Sequential, Oral, Sensory Approach to feeding.  (SOS)   It was excellent.
It
> has re-lite the fire to get back into working on feeding with Emily.  For
> some time we have just put this on the back burner.  We have been very
> discouraged and have gotten to the point "so what if she is tube fed
forever"
>  That's not so bad.!  We have even had therapists tell us this may be her
> best and others say she has no connection between the brain and her
stomach
> to achieve anything more!  Well, I'm ready to try something new.
>
> It was presented by a group from the Colorado Pediatric Therapy and
Feeding
> Specialists in Denver, Colorado.  They were wonderful.  I thought of Jude
and
> how lucky she is to have these people so close.  We don't have anything
like
> this in our area or anywhere nearby.
>
> They have a whole approach that is very detailed but the basics is it is
> sensory driven and Emily has lots of sensory issues so I think this is
right
> up her ally.  I was also fortunate enough to have Emily's OT from school
> attend and she is excited so she can thru in school.
>
> These people sound like they have it all together... I inquired about a
> consultation and they said they only see poeple from out of state once a
> month, so that means only 12 families a year.  I'm going to try it on my
own
> and see if we get some success.
>
> Jennifer - Mom to Emily (5, w/ T13 Mosaic) , Hannah (2) and 2 angels ^i^
^i^
>               Michigan, USA
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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