[tri-med] Re: feed tubing pediasure question

On Monday, September 20, 2004, at 01:56  PM, Jennifer Vanderbeek wrote:

>  Ours was always
> running out of vanilla w/ fiber, and we had to substitute with 
> chocolate,
> strawberry, or (ugh) banana.  Chocolate and strawberry did horrible 
> things
> to poor Elanor, and the banana was just plain disgusting.

And have you tried the orange cream?  We had one box of it--hoping to 
try some with Keren by mouth--never again!  That stuff stains like 
crazy--it turned things bright yellow, and if there was a spit-up.... 
YUK!  We just get the vanilla and vanilla with fiber now--our store 
usually has enough, thank goodness!

> After we went off
> WIC, we started getting the enteral type, and medicaid pays for it as 
> long
> as we have a doctor's rx for the correct amount.
>

We still have to use WIC, and I was able to get it worked out so we 
have the right amount.  I'm not sure how much longer we'll have to do 
that--I wish they would cut us off since it's such a pain to have to 
check out at the store with all of those coupons (I try to stock up 
ahead).  I shouldn't complain, since it's covered by insurance, but if 
WIC didn't cover it we'd be able to get the food through out home care 
company (they'll only supplement what WIC doesn't cover for now).

Loren (wife to Kraig, mom to Keren, T18, six days to the big two! :) )
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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