[tri-med] Re: endoscopic third ventriculostomy (ETV) surgery for hydrocephalus

Honestly, I have never heard of that!  Of course, my daughter was diagnosed
with hydrocephalus in 2003.  So she has a shunt.  Thank GOD, we have not yet
had any problems with it at all. (knocking on all wood I can find at this
moment!!).  However, it will be nice to file this information away so if she
does start to have shunt problems, maybe it would be an option.
Take care,
Irene

On Jan 30, 2008 6:53 PM, <mcmuni@xxxxxxxxxxxxx> wrote:

> Hi All!  Sorry it has been so long since we have written!  Things have
> been so busy... I just feel like I can't keep up any more!
> I was wondering if anyone had any experience with the relatively new
> endoscopic third ventriculostomy (ETV) surgery for hydrocephalus rather than
> the shunt.  This is the one where they go in a create a hole in the bottom
> of the third ventricle to drain the fluid from the brain.  When it works, it
> seems to be great in that the kids don't need as many follow up procedures
> as with the shunt.  However, it doesn't seem to always work on infants.  I
> guess they heal too well and the hole can close up!
>
> Maiya is 11 months now and they are telling us that is time for surgery
> for her hydrocephalus.  I'm leaning towards trying the  ETV since you can
> always put a shunt in later if it doesn't work.   Just thought I'd check
> with you all for experience or advice.  We're also going to meet with her
> pediatrician and geneticist this week to discuss the options.
>
> Thanks in advance for any help!  I hope you are all doing well in the new
> year!
> Callie
>
> Mom to Maiya (11mths T8M) and Cade (5yrs)
> Sebastian, Fl.... but soon moving to the Lewisburg WV area
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


-- 
Irene
Christina (6), Caroline (4 with partial trisomy 17p) and Kallie (2)
http://www.caringbridge.org/visit/carolinesmith
http://ourpieceoftheworld.blogspot.com


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: