[tri-med] Re: doctors

>I don't remember if the ethics guy was in Salt Lake City 
>or Chicago at one of the SOFT conferences, but I think 
>he went away with a slightly different view... It must have 
>been SLC. 

Nan,

It was!  Dr Botkins, University of Utah - SLC....

Leave it to Fawna to have scored one of his business cards ;)

Though I ended up with a different ethics advisors for TRIS.
Turned out Doug's long lost high school buddy Dave grew up
to be a professor of bioethics at the University of Delaware,
and I snagged his interest over dinner at their 40 yr reunion.
Now Dave's not an MD, he's a PhD, and he doesn't work for a 
hospital making life & death decisions for our kids, but he 
teaches others who someday may be.  Oh, and he doesn't think 
that tricking patients (or their parents) is exactly ethical either...




Fawna, mom to Philina 22 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes 
(TRIS) project - We are currently enrolling all varieties of 
Trisomy 13 & 18, living & deceased, for the pilot phase.  
To include your child's data and help update the medical 
literature please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page 
please see: http://www.livingwithtrisomy.org/
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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