[tri-med] Re: doctors

In a message dated 1/26/06 5:49:34 AM, karens@xxxxxxxxxxxxxxxx writes:


> The other option is to speak beforehand to your hospitals ethics committee.
> Speak to them as I have indicated - that you are being realistic, that you
> don't have "false" or "romantic" hopes.
> 

I don't remember if the ethics guy was in Salt Lake City or Chicago at one of 
the SOFT conferences, but I think he went away with a slightly different 
view. Sure, Philena was in there to make sure and share her view, Jude fed Kam 
during the presentation and Dom wandered in a couple of times as he was 
following 
Mark around. Now what could that guy really tell us? Except be prepared to 
share our views....And there were plenty of sweet babies with various degrees 
of 
need and none of us was blinking an eye. It must have been SLC. I think I 
remember Ali helping with Chelsy or Philena. Words like "quality of life and 
normal have a really different meaning to most of us.   LOL    


Nan.....Mom to Dom; Trisomy 18 Mosaic & Bipolar Disorder. 22 years old
        and to Ali; Autism, ADHD, Tourette Syndrome. 22 years old

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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