[tri-med] Re: do tri13/18 experience joy

Barb:

>In communication recently with an experienced neonatologist, I was quite
>surprised to read that he believed that children with tri 13/18 were not
>worth saving because they were "not sentient", which means that they are not
>capable of experiencing joy or interacting with their surroundings. 


Completely and totally false. Pamela totally interact with her surroundings. 
Now that 3 of her siblings have moved on, week-ends can get quite boring for 
her and she definitely is not the same child as when we interact with her, or 
take her on an outing whether it be the mall or anywhere where there is music 
or a huge crowd with lots of excitment and music.  Pamela is totally 
interactive and experiences joy, pain, and recently even being scared.  Her 
sister was practising for a monologue from MacBeth and it was quite loud and 
scarery sounding and Pamela's face started to contort as if she was going to 
cry, her lip began to quiver, I removed her from the room and she perked up.  
Whenever, she goes on an outing her total body is that of delight. Friends come 
up to her to say hi and she'll give a high five. She can ignore people to if 
she wants.  So don't tell me that "they are not capable of experiencing joy or 
interacting with their surroundings." These experts are too text booky and 
aren't really experiecing joy or interacting with their surroundings lol.

Betty mom to Pamela((Tri18)13yo, very active, charismatic personality, tube 
fed, reflux,scoliosis fixed, also mom to Tina 27, Allan 22, Annette 20, 
Jennifer 15, Grandma to Lawsen 2 yo and wife to Jim (British Columbia, Canada)


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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