[tri-med] Re: continuing sleep probs

Melatonin can increase seizure activity in some that have seizures.  It was 
posted in Exceptional parent magazine by a neurologist.  We tried Melatonin for 
Nicholas and it did increase his seizures, so we had to stop it.  
He sleeps when he wants to and now I just let him.  After 13 years, I'm tired 
of fighting it.  He has fewer seizures if I let him sleep when he darn well 
wants to.  Keeping him up just does not work.

Also, during the Denver conference, the Lints had to discontinue the omega 
supplement they were giving Zion due to the interaction with Keppra causing 
increased seizure activity, Jaime told me.  I had never heard that before, and 
will ask Nick's neurologist about it since Nicholas is on Keppra too. 

Nicholas was put on a blood pressure med last Thursday.  We saw his 
nephrologist and the protein in his urine was 4 times what it should be, so his 
doctor suggested a blood pressure med.  Now we have to watch his blood pressure 
and his potassium levels due to this medication.  The nephrologist said it 
helps preserve the kidneys for a while.


Jayne - mom to Nicholas - T13 - 13 years old
Hudson IL

A truly happy person is one who can enjoy the scenery on a detour.  
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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