[tri-med] Re: considering a g-tube

i think that is about how much kammie weighed at 9 months and she had an og
tube from the beginning.  we too tried to bottle feed but she just didnt
want it.  we ended up getting the g tube (mickey) at 15 months.  they put it
in laproscopically and that surgery was fairly easy on kammie.

she is a super tubby girl now.  i think tube feeding is easy and your family
might come to like it as it does provide a less stress back up.

the downside at the beginning was kammie spit up more until her gi system
found it's balance again.

check out kam's photos thru the years to see her weight gain.
jude, mom to derek-16, kelsey-14 and
kameron-5-full trisomy 18
golden, colorado usa
http://chromosome18.org/stories_trisomy.htm#Wolpert
http://www.trisomyonline.org/wolpert.htm
http://home.attbi.com/~jfwolpert2
----- Original Message -----
From: "Jackie Di Cecco" <Jackie.Di.Cecco@xxxxxxxxxx>
So, we have decided to consider a g-tube for her, to
> provide night feedings and for feeding when she is too sick to eat
> normally. Otherwise, we intend to continue to bottle feed and provide some
> solids (cereal and fruits) as much as possible. She does have the typical
> heart defects so surgery (even with conscious sedation) is a risk. Our
> pediatrician has been recommending this since the very beginning, yet
> cannot give us any "guarantees" on what weight gain we might expect. We're
> trying to get some perspective from other parents who have made this
> decision. What are the pros and cons you've seen? Would you do it again,
> given the chance? Our goals for Claire have been to provide comfort care
> and make her as much a part of the family as possible, so we're not
> interested in extraordinary measures for Claire, but want to be sure that
> we're making educated decisions about her care.



---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.445 / Virus Database: 250 - Release Date: 1/21/03

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: