[tri-med] Re: considering a g-tube

> Our daughter has full trisomy 18 and is 9 months old. She has been bottle
> fed since her 3rd day of life and while she has gained weight slowly, she
> has been doing OK. She was born weighing 3 pounds 4 ounces and now weighs
> 7 pounds 4 ounces. She recently had pneumonia and we placed a nasogastric
> ... So, we have decided to consider a g-tube for her

Hi Jackie,

Welcome to the list.  The g-tube isn't a bad idea, but I'm glad to hear
you intend to continue with the oral feedings too.  It's easier to keep
them eating, then to get them eating again.  My daughter Philina didn't
get her g-tube until she had some surgery complications at age 19.  It's
taken us a year to really get her eating well by mouth again.  I don't
begrudge the tube at all, and it can stay as long as she will leave it
relatively alone, but she didn't really start putting back on any of the
weight she'd lost while she was in the hospital, until she was eating well
orally again.

Is that Crystal Lake in Illinois???

Fawna Lockwood , mom of Thom & Rhonda,
Lara, Philina 20yrs (PT6p & Moya Moya Syndrome),
wife of Doug, 11 =^..^='s, 2 Tortoises, 1 Turtle,
and 3 llamas. Philina's Pharm Bengal Cattery,
Escondido, California, USA
http://home.mindspring.com/~fawna33/index.html
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