[tri-med] Re: cleft palate/bad language warning?

This should probably go to family list... 

Try adding baby bottle "nlpples" and talk about "svcking" and you will
get more chillies!

I was telling a parent once about what we use for Claire and was
warned that my email could be offensive...

Debbie, mom to Claire (t18 - 2 years old)


On Mon, 28 Mar 2005 18:28:15 -0800 (PST), Nanci Grimes
<nancii@xxxxxxxxxx> wrote:
> Oh, LOL!  I can assure you I did not use any improper language!  It must have 
> been "that word" that you mentioned . . . hehe . . .
> Jocelyn Knowd <jknowd@xxxxxxxxxx> wrote:Just wanted to share something with 
> you. My computer has the "chillies"
> symbol to indicate that the email contains "improper words". The mail
> coming from Nanci made me all the more curious to know why, as from my
> knowledge of our dear Nanci, I doubt that she would use bad language. So I
> read through, and you know what.... the only word I can think they are
> possibly alluding to is "suck". What are we coming to when the most basic
> word in our language is now considered to need a warning. Boy oh boy oh
> boy oh boy............
> 
> At 09:14 AM 28/03/2005 -0800, you wrote:
> >Arthur: It is simply AMAZING that Refoel is nine months old--seems like
> >just yesterday he was born. Soleah had many issues with sucking even
> >though she only had a high palate (not cleft) . . . she was ng tube fed
> >but we always gave her a premie pacifier to allow her to continue to suck
> >and finally after time she did eat by mouth. With Soleah, some people
> >considered (and were very vocal about it) the surgeries and test "I put
> >her through" but at 11 years old and going strong, I'm happy I did. As
> >long as he is gaining strength and you feel his life will be improved
> >either now or later by the procedures, I would be for it.
> >"alang12.1@xxxxxxxx" wrote:
> >Does it make sense to fix a cleft palate? Refoel is now nine months old.
> >He does show some sucking ability. Does anyone have experience with
> >trisomy 13 and severe celft palate. He has no nose and restrticted
> >arirways, so there is little chance he will be able to get out the trach.
> >Does it make sense to make him go through all those operations to fix the
> >palate? Sincerely, Arthur
> >
> >___________________________________________________________________
> >Speed up your surfing with Juno SpeedBand.
> >Now includes pop-up blocker!
> >Only $14.95/month -visit http://www.juno.com/surf to sign up today!
> >
> >Building ___ooOOoo__ Rainbows
> >www.trisomyonline.org
> >Families Helping Families On-line
> >
> >
> >
> >
> >Nanci - Wife to Mike, the ever patient one . . . Alicia, 20, nursing
> >student . . . Shani, 14, homeschooler, biggest helper . . . Soleah, 10,
> >Trisomy 18M--always teaching me . . . Corey, 2, my boy-wonder!
> >
> >
> >Romans 5:3 . . . but we also glory in tribulations, knowing that
> >tribulation produces perserverance; and perserverance, character; and
> >character, hope.
> >
> > Building ___ooOOoo__ Rainbows
> > www.trisomyonline.org
> > Families Helping Families On-line
> 
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
> 
> Nanci - Wife to Mike, the ever patient one . . . Alicia, 20, nursing student 
> . . . Shani, 14, homeschooler, biggest helper . . . Soleah, 10, Trisomy 
> 18M--always teaching me . . . Corey, 2, my boy-wonder!
> 
> Romans 5:3  . . . but we also glory in tribulations, knowing that tribulation 
> produces perserverance; and perserverance, character; and character, hope.
> 
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 
> 


-- 
Time flies when your having rum.
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the impossible!
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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