[tri-med] Re: cleft palate/bad language warning?

Oh, LOL!  I can assure you I did not use any improper language!  It must have 
been "that word" that you mentioned . . . hehe . . . 
Jocelyn Knowd <jknowd@xxxxxxxxxx> wrote:Just wanted to share something with 
you. My computer has the "chillies" 
symbol to indicate that the email contains "improper words". The mail 
coming from Nanci made me all the more curious to know why, as from my 
knowledge of our dear Nanci, I doubt that she would use bad language. So I 
read through, and you know what.... the only word I can think they are 
possibly alluding to is "suck". What are we coming to when the most basic 
word in our language is now considered to need a warning. Boy oh boy oh 
boy oh boy............

At 09:14 AM 28/03/2005 -0800, you wrote:
>Arthur: It is simply AMAZING that Refoel is nine months old--seems like 
>just yesterday he was born. Soleah had many issues with sucking even 
>though she only had a high palate (not cleft) . . . she was ng tube fed 
>but we always gave her a premie pacifier to allow her to continue to suck 
>and finally after time she did eat by mouth. With Soleah, some people 
>considered (and were very vocal about it) the surgeries and test "I put 
>her through" but at 11 years old and going strong, I'm happy I did. As 
>long as he is gaining strength and you feel his life will be improved 
>either now or later by the procedures, I would be for it.
>"alang12.1@xxxxxxxx" wrote:
>Does it make sense to fix a cleft palate? Refoel is now nine months old. 
>He does show some sucking ability. Does anyone have experience with 
>trisomy 13 and severe celft palate. He has no nose and restrticted 
>arirways, so there is little chance he will be able to get out the trach. 
>Does it make sense to make him go through all those operations to fix the 
>palate? Sincerely, Arthur
>
>___________________________________________________________________
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>Building ___ooOOoo__ Rainbows
>www.trisomyonline.org
>Families Helping Families On-line
>
>
>
>
>Nanci - Wife to Mike, the ever patient one . . . Alicia, 20, nursing 
>student . . . Shani, 14, homeschooler, biggest helper . . . Soleah, 10, 
>Trisomy 18M--always teaching me . . . Corey, 2, my boy-wonder!
>
>
>Romans 5:3 . . . but we also glory in tribulations, knowing that 
>tribulation produces perserverance; and perserverance, character; and 
>character, hope.
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line


Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line




Nanci - Wife to Mike, the ever patient one . . . Alicia, 20, nursing student . 
. . Shani, 14, homeschooler, biggest helper . . . Soleah, 10, Trisomy 
18M--always teaching me . . . Corey, 2, my boy-wonder!


Romans 5:3  . . . but we also glory in tribulations, knowing that tribulation 
produces perserverance; and perserverance, character; and character, hope.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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