[tri-med] Re: chronic sorrow/recurrent grief...Mieko in hospital

Ruth

How did the homeschooling come about?  We are in the same situation here...but 
Esprit is a little bit younger so I haven't crossed the road yet where I need 
to try to get services at home after she is 3.... I'm wondering how I go about 
it - with the biggest likelihood of success.  What state do you live in?

Trisha ( Mom to Esprit T18 - born 4/11/03)

-----Original Message-----
From: Ruth <t18mom@xxxxxxx>
Sent: Feb 24, 2005 8:30 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: chronic sorrow/recurrent grief...Mieko in hospital

Maya,

Sorry to hear that Mieko is in the hospital. Sending prayers your way for
her to have a speedy recovery.

It is such a difficult thing to always be so concerned what our kids are
exposed to. I had a therapist the other day say to me when she was at my
house for therapy, "I'm going to wash my hands because I'm feeling a little
under the weather." Now, I should have said that I'd rather not have had her
come in if she felt that way but I didn't and I think Matthew has a little
cold again. With his heart condition this is never a good thing. The funny
thing is that Matthew is home schooled exclusively because of his poor
immune system and she knows that because it was specifically addressed at
his I.E.P. I guess we shouldn't beat ourselves up too much...but I still
find it hard.

Hang in there,

Ruth, wife to Rudy, mom to Brendon (19), Scott (17), Joshua (13), Matthew
Rudy
(Full T18, born 09/13/01, and Rudy Matthew (born 08/13/04)
http://members.cox.net/t18mom

Lord as I face each new day, grant me power, perseverance, patience and
peace.

> Thanks for the pep talk Michelle. Mieko is in the hospital again
> with some kind of respiratory virus, so I'm feeling a little low.
> She's a trooper. She's improving, though she still needs oxygen
> and has horrible sounding congestion.  I know we're very lucky
> she's done so well.  Sometimes we forget how vulnerable she is
> and now I'm kicking myself for exposing her to all sorts of
> people last week.
>
> How do you deal with minimizing illness for your kids? I know
> it's impossible to keep them from getting sick at all, but it's
> so frustrating to know even a cold could land your child in the
> hospital or even worse.
>
> I'm sorry to hear other kids like Aleah are sick as well. Sending
> positive thoughts her way as well.
>
> Maya
> Mom to Mieko 3/09/04 T18


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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