[tri-med] Re: catherine - spec ed schools & conductive ed

Isn't it comforting to know our frustrations are the same!!!!!  I am also in
regular contact with our Sweden friend (met via you - thanks!) and that is
how I learnt of conductive education - I have tracked down a place in Sydney
and they have sent me the forms, it's pricey but what price do you put on a
childs education??  I will be booking Matilda in and doing the 1 hours drive
once a week.  I have started private physio with a lady who used to teach
conductive education and in only 2 lessons she has Matilda prop sitting by
herself for about 30 seconds - absolute miracle.  Champion child!  Matilda
will also roll over and over and now tries to pull herself up into a sitting
position - probably only makes it 1/4 way up then does a controlled flop.
It has really inspired me to get her into the "real" CE class.  I have
considered sitting in on a couple of the classes at our special needs school
to see exactly what they do and have a go enrolling Matilda for a couple of
days a week, that with private physio and the CE class she should be great
guns, but the big goal is to get her to a level where she can attend our
"normal" local school when she turns 6 as they have a special needs class
but also mix with the "normal" children - she is so stimulated by other
children.  She actually hated the noise of little children for the first
couple of years, she would scream until I took her from the noise.  Now she
loves them - see what having an annoying little brother can do - makes you
tolerant!

I hope you find something for Kammie - I know of a mum who fought to get her
little boy into our local school and she just kept telling the Dept. of Ed
that they were discriminating and if you throw that word around often enough
in this country they back down and you get your way - young Alec's cognitive
and fine motor skills are a little better than Matilda's - I am realistic
enough to know that she needs work before I put up the same arguement.   I
always go by the theory that everything happens for a reason and everything
will work out for the best in the end.  So something good will come Kammies
way.   I am also learning that it doesn't matter how much worrying I might
do, the situation will pan out the way it should - worry or no worry!  That
little thought is allowing me a bit more sleep these days!!!!!!!

Catherine, wife to Richard, mum to Matilda 4 (T-18) and Tom 2


----- Original Message -----
From: Judith Wolpert <jfwolpert2@xxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Saturday, January 25, 2003 3:27 AM
Subject: [tri-med] catherine - spec ed schools & conductive ed


>
> kammie goes ot a special ed only school.  she did this for 4yr old
preschool
> and this year in kindergarten.  she will NOT be going there next year.  i
> thot she would get better therapy services there but this is not the case.
> it is exactly how you describe it as babysitting.  that is not what i want
> for kam but it might be what some other parents are looking for.  she
needs
> to be around typical peers.  the more the better.  i am already starting
my
> summer program search to find someone where she can be around some regular
> kiddos a couple of days a week.  last summer after contacting over 50
places
> i was not successful.
>
> i recently posted to the listserv about conductive education to see if
> anyone had heard of it as i have a friend in sweden with a 4 yr old full
t18
> girl doing it.  if you have access i would check it out.  it sounds like
it
> is used most often with cp kiddos.  very intensive 5 hours a day for 5
weeks
> or something.  this kind of intense repitition is how kammie learns best.
> the closest program to here is in california so i am not able to get kam
in
> it for now.  let me know what you think as i might check it out for summer
> if i could find a place to stay with kam and such.
> jude, mom to derek-16, kelsey-14 and
> kameron-5-full trisomy 18
> golden, colorado usa
> http://chromosome18.org/stories_trisomy.htm#Wolpert
> http://www.trisomyonline.org/wolpert.htm
> http://home.attbi.com/~jfwolpert2
> ----- Original Message -----
> From: "Richard Carlick" <rcmtcarlick@xxxxxxxxxxxxxx>
> > Hey Jude, I have emailed you before about my beautiful princess
Matilda -
> I
> > am very confused about her schooling and what to do with her and your
> email
> > caught my attention - does Kam go to a special needs school?  I'm not
> eager
> > to send Matilda to our local special needs school because I tend to
think
> it
> > could be just a baby sitting service not a place of education.  Matilda
> > yearns for so much and is so eager to learn.  We are just in the process
> of
> > learning about conductive education and it's benefits - has anyone else
> had
> > experience with this??
>
>
>
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