[tri-med] Re: cardio experts?

<<One thing I do know is that your current
cardiologist is right - a murmur that gets quieter is not always a good
sign!!!>>

How can a cardiologist know just by hearing(or not hearing a murmur) that it 
has not closed.  If he can't hear it, how can he decipher between it having 
closed or not.  When Faren saw her cardiologist last summer, I don't 
remember if he couldn't hear it or only hear it faintly, but he didn't want 
to see her for like 2-3 years. I think he was thinking they were closed.  
She just had, at birth, a pda that resolved, then 2 vsds and an asd that 
were very small that her cardiologist I guess assumed closed.  How can he 
tell by just hearing when sometimes it means they aren't closed...agghh  the 
questions.

Michelle Wilson, mother to Faren and wife to Rick




>From: "Karen Schuler" <karens@xxxxxxxxxxxxxxxx>
>Reply-To: tri-med@xxxxxxxxxxxxx
>To: <tri-med@xxxxxxxxxxxxx>
>Subject: [tri-med] Re: cardio experts?
>Date: Thu, 31 Jan 2002 23:54:11 +1100
>
>
>----- Original Message -----
>From: "Lori Solander"
> >>The one we saw this time said he doesn't hear a murmur at all, and that 
>is
>NOT good.  He said the holes have not closed - the blood is flowing over 
>the
>holes more slowly.  He also said that she's always had pulmonary
>hypertension, but that now it had progressed to pulmonary vascular disease.
>I was just wondering if anyone had knowledge or experience with this.
>
>What sort of information are you after sweet? Are you after repair
>information? Or non-repair?? Life expectancy?? Quality of life??
>I know a few children with T-18 who have/have had this problem. I can try
>and put you in touch with them if you want. Paul (father of Kelli)
>immediately springs to mind. One thing I do know is that your current
>cardiologist is right - a murmur that gets quieter is not always a good
>sign!!!
>
>Sending loads of hugs!!!
>
>Wind moving through grass so that the grass quivers. This moves me with an
>emotion I don't even understand.
>- Katharine Mansfield
>
>Keep Looking for Rainbows!!!
>Karen, Mum to Alex (7, T-18 mosaic)
>Sydney, Australia
>http://members.optushome.com.au/karens
>http://www.trisomyonline.org
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>




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