[tri-med] Re: cardio experts?

----- Original Message -----
From: "Lori Solander"
>>The one we saw this time said he doesn't hear a murmur at all, and that is
NOT good.  He said the holes have not closed - the blood is flowing over the
holes more slowly.  He also said that she's always had pulmonary
hypertension, but that now it had progressed to pulmonary vascular disease.
I was just wondering if anyone had knowledge or experience with this.

What sort of information are you after sweet? Are you after repair
information? Or non-repair?? Life expectancy?? Quality of life??
I know a few children with T-18 who have/have had this problem. I can try
and put you in touch with them if you want. Paul (father of Kelli)
immediately springs to mind. One thing I do know is that your current
cardiologist is right - a murmur that gets quieter is not always a good
sign!!!

Sending loads of hugs!!!

Wind moving through grass so that the grass quivers. This moves me with an
emotion I don't even understand.
- Katharine Mansfield

Keep Looking for Rainbows!!!
Karen, Mum to Alex (7, T-18 mosaic)
Sydney, Australia
http://members.optushome.com.au/karens
http://www.trisomyonline.org

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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