[tri-med] Re: cardio experts?



>>>>>.Rylie has been on Lasix since she was a couple days old.  She has been
on
Lanoxin since she was a couple months old.  She was due (past) to have her
dig level checked when we went in.  When I brought it up, he said that the
doses were so low that they probably weren't doing anything for her, so we
should try to take her off both meds.  Start with the Lasix, and if she does
ok, take her off the Lanoxin a week later.  I want to talk to her ped before
we do that, though.<<<<<<<

Lori you said that this was a new cardiologist right??  I would defiantly
check with your pead, I remember when they were taking prepulsid off the
market, Bec's cardiologist said to leave her on it and get the papers filled
out for medical necessity so she could stay on it, when the pead showed me
the report from the cardiologist it said that her qrs complex was 449
millisecond and 450 millisecond is considered long ( this is were the risk
was with the prepulsid causing deaths) needless to say the pead took her off
the prepulsid  I did not feel this particular cardiologist cared about
Rebecca as a child, I think he just saw her trisomy :0( we will have a new
one next time we go as this guy has left.)

Susan mom to Rebecca T18 m age 10yrs and Mark ADD/LD age 9 yrs wife to
Glenn.
Newcastle, Ont,
Canada



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: