[tri-med] Re: cardio experts?


>>>>>>I sometimes wonder if I'm some kind of over-reactive freak.  Everytime
something comes up with Rylie's health, I think, "Oh God, is this the thing
that's going to get her?<<<<<<

I think we all feel that way, at least I know I do, every cold I wonder if
this will be the one......


<<<<<<<"  Some days, even when she's perfectly fine, I
start thinking of how I would want her funeral to be, etc.<<<<<<<

I do this to, so does a friend of mine, anyone listening to our conversation
would think we were seriously off our rockers,  but I think it is in some
ways good to think ahead, when someone does die everyone is so upset that
they don't have time to plan what they want, that's why people pre arrange
their own funerals.......my mom even has it in her will that she wants 3
days of visitation.......last funeral I was at I was really impressed at the
place and their service, when we left I was checking to see if they had any
lawn space for a balloon release ( didn't tell anyone what I was doing, I am
sure they would have thought I was loony :0)  )


>>>>>>.  I feel guilty for thinking this way - I think it
makes me no better than those docs in the beginning with all their doom and
gloom. <<<<<<<

 I feel this way to,  and  I rarely tell people I think that way, they just
can't deal with it, but all of us in the trisomy fun park live with the
reality that someday it will happen to us, it does really stink to know that
in all probability you will outlive your child



 >>>>>> Do you
think I need some serious help or what??<<<<<<<

no, :0)

Susan mom to Rebecca T18 m age 10yrs and Mark ADD/LD age 9 yrs wife to
Glenn.
Newcastle, Ont,
Canada


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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