[tri-med] cardio experts?

Are there any cardio experts on the list whose brain I could pick?

I took Rylie to see the cardiologist last Thursday.  If I understood him right, 
it wasn't a very good report. She had a VSD, ASD, and PDA at birth.  The PDA 
closed on its own.  When we were there last, he said that her murmur was not as 
loud and that he thought one of the holes was almost closed.  He has since 
retired.  The one we saw this time said he doesn't hear a murmur at all, and 
that is NOT good.  He said the holes have not closed - the blood is flowing 
over the holes more slowly.  He also said that she's always had pulmonary 
hypertension, but that now it had progressed to pulmonary vascular disease.  I 
was just wondering if anyone had knowledge or experience with this.  

Thanks so much - 

Lori Solander, mom to Rylie, 4, full t-18, and Taylor, 9
Topeka, KS  USA

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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