[tri-med] brain damage?

 Last night I watched Law and Order SVU and little girl was shook to death.
I couldn't stop thinking about how little it takes to cause brain damage,
which also made me think if any harm was done to my son. At age 4 mos old he
started having seizures, which caused him to stop breathing. Doctor told me
that over 45 seconds without breathing will cause brain damage. One night
seizures were really bad and we drove to ER. We spent 3 hours! in a room
waitnig for doctor. I cried and yell but was unheard. My son kept going in
and out of seizures. He was very relaxed when he was out of seizures and
suddenly he would go in again.

On today's show Strong Medicine there was a little girl who had seizures and
treatment was immidiate to her. Now, could that night actually cause some
damage to my son's development? Doctors told me that its not possible.

I don't remember everything, taking in consideration that that night
happened 4 years ago but one thing I know, my son should have had immidiate
care and not keeping us in the waiting room for 3 hours. In addition, that
night was so stressfull that I can't even recall how many times me and my
husband gave CPR. I can't recall how long my son was in the seizures either.

Sorry for a long letter but what your opinion on this situation. I need to
mention that my son is about 40% "typical" development and doctor says that
his genetic (partial trisomy 19q) caused slow development. In argument,
there is no kids with similar conditions, so they can't possibly know what
this condition would cause. Pediatrician did say that it is unacceptable
that ER kept little kid waiting for that long esp with seizures but nothing
was done since. Are there tests that we can do to check little one's damage?

Thank you for reading,

Julia, mom of 5yo Daniel (partial trisomy 19q)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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