[tri-med] Re: back to school

>Time for updates:
>How's everyone doing with 'back to school'? (in the parts of the 
>world where this is happening now!)
>IEP's and schedules?
>
>Michelle mom to Alex (18, partial trisomy 14 mosaic) and Molly (14)
>MichiganUSA

Hi Michelle,
We are in limbo...should know soon whats happening...I left school a 
few weeks early last June, I was very disappointed with the program 
they had Natalia on.
She was doing nothing extra ordinary, nothing specific to her needs, 
just in a MOVE program.  The MOVE program is where they move the kids 
all day from one center to the next, but there is no real one on one 
except for the moving...For the entire year her computer time 
consisted of pushing a button and they were thrilled she would wait 
for the music till she pushed that one button again...Yes, at first 
that was exciting that she would wait, but when she tackled that 
concept, they should have added something else...To waste a whole 
year with one button, Natalia can do more....

Of course she was suppose to have more, but it wasn't getting done. 
Oral feeds, Visual stem with a light board etc... I left stating, it 
was a waste of my time and Natalia's and we would not be coming back 
to the same room this year as none of the kids seem to progress -- it 
was a very low functioning class...

When I spoke with them later, they mentioned adjusting the 
program...heck, they should have done what they were suppose to do 
...they just had too many low level kids in that class...Anyhow, I 
hear the teacher is gone...retired.

So I am sure the IEP will be interesting, as I would like her to go 
to a local Blind childrens school for sensory stimulation etc...and 
they are going to come back  stating they have a new teacher and 
program...

I'll let you know how it turns out...but that class is not for 
us...They put the kids in the wheel chair and tie their feet down. 
only out to walk....I want one on one in the walker, and stations, 
and songs and art etc....Am I asking for too much...???

I don't really feel she is ready for a fully inclusive program...but 
will go that route if they fight me....Then they will have to provide 
me with one on one for the public school...I'm sure all will work 
out...it always does...

When I left in June an IEP was scheduled when we would be on vacation 
so I postponed it. It should be coming up very soon, although I 
haven't gotten any date at present...They have been off for the 
summer...I'll keep you posted..

ThereseAnn
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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