[tri-med] Re: any ideas

Good morning,
Well Cody does not realize he is different.  He is smart but I guess not in the 
same way that Haiden is.  Cody has an awesome sense of direction and he is 
amazing on computers.  He can also work DVD and video players.  He is an 
amazing little boy who loves to be left alone and can play for hours all alone. 
 He would be much happier if he was in a classroom and he was the only student. 
 Even if we have our older children here for a weekend he goes to the basement 
if they go to the basement he comes upstairs to the office and so on and so on. 
 He just wants to be left alone.  That use to make me very sad.  But then Paul 
said to me one day "Tracy isn't he happy?  Do you see just how happy he is?"  
And he is right so I'm over it.  It hurts sometimes that he has never gets 
invited to birthday parties...but oh well he would not enjoy it anyway!
As for me and my stress level.  I have my moments like anyone else.  But for 
the most part I have given it all to God and I feel great.  I pray a lot and 
read my Bible.  I have a great support group of friends here that are awesome 
and they let me talk and cry when I need too.  I have been going to in service 
meetings to find out different ways to help Cody.  I guess we will be learning 
for the rest of Cody's life because there are always changes and things that we 
can learn to better help him




-------------- Original message -------------- 
From: Thea <haidensmom@xxxxxxxxxxxxx> 

> Thanks much for the info. We are indeed doing those same things (how 
> interesting) at home and school. Haiden has a tech talk (but he can't use it 
> for 
> communicating just practice because he obsesses over it. We also have Board 
> Maker. Haiden does speak but mainly in 1-3 word sentences. He also knows 
> about 
> 70 signs. He is very patient at making sure we understand his wants and needs 
> if he's in the mood. Other times, when he is in a hurry (which is most of the 
> time), he gets frustrated. Haiden is just soooo busy. We wish he had an off 
> switch or pause button so we could take a break once in a while. It is also 
> very difficult to get babysitters. My parents are very involved but they 
> aren't 
> in good health. My husbands parents aren't really involved (and they live 
> literally 10 blocks away). 
> I too believe that a lot of Haidens frustrations are communication related. I 
> also think now that he is getting older, he is noticing he is different than 
> other kids and that makes him nervous. I cannot begin to tell you (I am sure 
> Cody is the same way) how smart Haiden is. He can figure anything out and is 
> very good a manipulation. Can I ask how you, as a parent, decrease your 
> stress 
> level. I can say I am exhausted at the end of the day and wake up anxious. I 
> pray every day that I could share a little bit of Haidens energy. Even if 
> just 
> an ounce!! 
> Thanks for listening! 
> Thea, mom to Haiden (T9p) 
> verheyen@xxxxxxxxxxx wrote: 
> Hi Thea 
> Our son Cody also has Trisomy 9p. He is also very busy, non-verbal and hardly 
> ever walks is always running. He uses signs, a communication book and board 
> and 
> pecs. We started using pecs a lot more over the last few months he seems to 
> have 
> calmed down alittle. 
> 
> Building ___ooOOoo__ Rainbows 
> www.trisomyonline.org 
> Families Helping Families On-line 
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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