[tri-med] Re: any ideas

Thea:
   
  Well, Haiden is a typical "trier" and a typical kid in many ways.  I laughed 
at the question . . . Behavior issues????   Let'e see . . . we've experienced 
it only every day from ages 4 to 12!  I love the "trying" comments . . . the 
best advice is to keep him occupied and try to keep whatever really gets him 
irritated to a minimum.  I thought Soleah would never get better--only to hit 
13 and begin to settle down.  She is non-verbal and gets frustrated easily and 
has been a handful for a long time.  She finally seems to be maturing and 
enjoys certain things which is nice.  We try to keep things fairly calm if 
possible and if something really seems to set her off, we will avoid it.  We 
tried several medications and combinations of meds (for 4 or 5 years) only to 
take her off of everything eventually.  Honestly, the best improvement was made 
with diet changes.  We see a wonderful nutritionist who recommended a diet for 
kids with autism alogn with some supplements.  I can
 direct you further on this if you are interested.  We dont' follow it exactly 
but take many things from it and it did help.  It's been a long and "trying" 
journey but hang in there!  Let us know how things are going from time to time. 
 
   
  Nanci, Mom to Soleah - trisomy 18 m
Thea <haidensmom@xxxxxxxxxxxxx> wrote:
  Hello! I have never posted here but have posted to tri-family once or twice 
in the past. Wondering if anyone has had any issues with certain behaviors in 
trisomy 9-ers. My son, Haiden is 4 years old. He has partial trisomy 9. This 
past year he has been very "trying" (is that why they call trisomy kids 
"triers", lol!). He has always been "busy", constantly doing something. 
However, he has begun to get more busy and talk (has limited speech) very 
loudly. It has sure worked my nerves. Haiden seems to do the exact opposite of 
what you ask him to do. If you say, "Haiden don't sit on the table", he sits on 
the table. The power of suggestion is huge to him. Even if we are discussing 
his actions and not directly talking to him, when he hears what we are talking 
about he does it! YIKES!!! Haiden is so loving, but very impatient. We have 
tried Ritalin (thanks to a psychiatrist at Mayo) which DID NOT HELP. He 
actually began with tongue thrusts and facial tics when he
took one dose. Needless to say, we never gave him that again. Then, we tried 
Strattera. Didn't help either. Haiden got excessively emotional/tearful and 
then began to hit himself. We stopped it immediately. We have tried all sorts 
of herbal stuff which seem to make him more hyper. I don't know what we can try 
next. We have to give him a small dose of Clonidine to get him to fall asleep 
or he stays awake until he drops (which is really late and no one gets any 
sleep). The only bad thing is that it doesn't work for the whole night, so he 
gets up during the night and either wants to stay awake or sleep with us. I 
recently had another child in January and am so exhausted. I really need some 
advice from anyone. Understand that Haiden is extremely bright and very 
perceptive. He doesn't take "no" for an answer. We love him dearly and want to 
help him calm down a bit so that he can learn as much as he can; make as many 
friends as he can; and handle life the best that
he can. I could go on and on, but am pretty tired and since both children are 
sleeping, I should be too. Thanks in advance for any info!!!
Thea
Mom to lovable Haiden Briant (4 years old, partial trisomy 9 and adorable and 
born 2 months early on the most appropriate day...July 4th! Probably why he is 
soooo independent) and Ava Grace (8 weeks and very sweet!)
ohh, and wife to Brian (going on 7 years!)
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Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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