[tri-med] Re: any ideas

Sooo amazing how they are alike.  It's great to know that it is not just him.  
We have felt for a long time that it was our faults.  Haiden carries baggies 
around full of cards or whatever.  He has a sensory bin full of navy beans at 
home that he loves.  He has to have the same routine during the day and has 
difficulty with new teachers or subs or when he wants his way.  I think its 
because so many of them do not accept it as the way he is, they think it's a 
power struggle.  We've had such a hard time with the school system, however, he 
has a one=one assistant the he loves dearly and vice versa.  The school is now 
trying to change assistants.  I am fighting this of course.  
  I appreciate knowing there are similairities between our kids.  I would llove 
to share pics of Haiden and see pics of yours.  Can I attach a pic to my emails 
or how do I do it.  I would love to meet other tri-9er families.  We live in 
the Chicago area.  I am soo excited.  Thanks!!!
  Thea
  mom to Haiden, 4 yrs  (T9p)
verheyen@xxxxxxxxxxx wrote:
  Hi Laurie
WOW you have almost described Cody to a "T" Except he wants no part of 
backpacks or things like that. He loves to carry little objects like toys in 
his hands. He also gets very, very upset when his routine is changed. I have to 
put things on in the same order take them off in the same order. Yes he has 
OCD!!! He also hits when things are going badly or there is a major change in 
his day. I would love to meet Brianna one day...Do you have a pic you could 
share with me. I wonder if they look alike!? So cool!!!
Hugs, 
Tracy mom to Cody (Trisomy 9p)
-------------- Original message -------------- 
From: TRIER9@xxxxxxx 
> Hi, 
> Don't know if this will help........but we just had Brianna diagnosed by a 
> psychiatrist. She has OCD and anxiety. We are getting ready to start meds and 
> therapy. She is very obsessive and compulsive. Hard to change her mind if she 
> is 
> 'in a doing mode.' 
> Also, VERY upsetting to change her shedule/routine. If we change our minds 
> about going somewhere........she gets VERY mad and cannot let the subject 
> drop...she even goes so far as to hit me or her sister and brother. On the 
> other 
> side of the coin. She is sweet, gentle, giving and so smart. Wonder if it's 
> that 
> darned #9 chromosome that pops in and out? It's hard to explain Brianna. Her 
> skills are very scattered. Always have been. We are trying very hard to get a 
> handle her ways, she's very much a person-of-habbit though. Another huge 
> issue 
> we have with her is her wanting to be in charge of everything. My purse, 
> keys, 
> cell phone, baby's diaper bag, camera...etc........she wants to hold it all. 
> She is very strong and can carry a lot! Oh, and she has to sleep with her 
> 'stuff' on her bed. Literally surrounded by it all!! 
> Laurie 
> Mom to Bri w/t9p 
> 
> 
> ************************************** 
> See what's free at 
> http://www.aol.com. 
> 
> 
> Building ___ooOOoo__ Rainbows 
> www.trisomyonline.org 
> Families Helping Families On-line 
> 

Building ___ooOOoo__ Rainbows
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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