[tri-med] Re: an appt.

----- Original Message ----- 
From: "Karen" <karens@xxxxxxxxxxxxxxxx>
> They have to be his goals - not yours (or ours - this is happening for me
as
> well and I have to be careful not to impose my expectations and goals on
> Alex, but let him set his own - its called being a parent :-)))

Yep, I struggle with that one, tend to 'mother' too much. Just ask Jim! lol

It's a fine line between teaching/guidance and imposing/forcing. Also,
includes household/family expectations for all residents to follow.

> > Don't forget too the social aspects of life after school - eg dating
help or
> even how to make friends out there in the bigger world. (goodness knows I
> know lots of NDA kids that need help with that one)

GULP

Alex's notion of 'friends' is not mine.
Now, that doesn't necessairly make it wrong, but he still calls someone he
only knew through school/soccer 'like a brother to me' and who graduated
last year and he's seen in passing twice. They NEVER had any extracurricular
activitys together but Alex feels this bond with Jay.

His 'best buddy' hasn't had any out of school contact with Alex for the past
3 years. Perry stopped it and quit returning Alex's phone calls. Yet Alex
considers him his best friend. A few 'friends' from school have used Alex in
ways that annoy me (giving them a ride to somewhere or having him get them a
burned CD from another boy --which really made problems for us as that is
illegal).

We feel his concept of friends is not an accurate one. He SO wants to be a
part and join, it makes him a target for things and that's a worry.

We don't try to disuade Alex from these feelings he has as they make him
feel good. But it's not a realistic picture.

> Is that enough to start you thinking?

The brain's spinning and processing. Thanks.

I still hate to do this but am resolved to do right by my baby and  will
gladly pay the piper by inviting the government into our lives.
Even if it means the school will get wind of the trisomy diagnosis. But hey,
it's been a well kept secret for years! lol

Michelle mom to Alex (17, partial trisomy 14 mosaic) and Molly (14)
MIchiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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