[tri-med] Re: akaiya on youtube

Just loved the first one, even though I had to put my head on one 
side to see her cute face. (Tess used to babble like that too). But 
the second one (Cheeto) I could not hear or see anything, and when I 
clicked play it just kept jumping back to the start, and went 
nowhere. She is a beautiful little girl, and I was impressed too that 
she clamps her mouth shut. Tess does that a lot now, hence the 
feeding tube (smile). Thanks for sharing.

At 11:05 AM 14/04/2008, you wrote:
>i put some videos of akaiya on youtube that i thought were amusing. 
>they are both from last summer. one is of her "talking" - not her 
>ear piercing screams, just some cute talking. and the other is of 
>her eating her first cheeto.
>http://www.youtube.com/watch?v=ccKL0iuNPg8&feature=user
>
>http://www.youtube.com/watch?v=gdfIDLeaqSc
>
>another thing i've been meaning to share...we were at the doctor 
>about a month ago b/c akaiya had been having fevers and congestion. 
>her ped got out a tongue depressor and the minute akaiya saw it she 
>clamped her lips together. i have no idea how she knew he was going 
>for her mouth with that thing, but she did. her doc was so impressed 
>with her (even tho she was being a little punk and not letting him 
>look at her throat). he would say to her "you know i'm going to try 
>and get this into your mouth don't you?" and she would turn to him, 
>give him a big ol grin, and clamp her little lips shut. we've only 
>been with this doc for a little over a year, and he's always pretty 
>quiet. he turned to me and said with quite a bit of amazement "she's 
>actually really smart." i was so shocked i just smiled. we've 
>actually been there two more times since that day to pick stuff up 
>and whatnot...and he treats her totally different now. i almost feel 
>like she won him over. it's not like he wasn't
>  nice before - he just wasn't really warm or interested. it felt 
> good having a positive doctor experience!
>
>oh yeah, and kaiya lost her first tooth! she looks like a little pirate now...
>
>kelly - mom to akaiya t18 - 5 yrs
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
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>
>
>
>--
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>8/04/2008 5:03 PM

Jocelyn, loving Nanna to Tess with Trisomy 18, age 11 years
. 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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