[tri-med] Re: Zion Lint Update 9-26-06

(Thanks for the many prayers--keep them coming.=A0 =
And
thank you a bunch Dana.=20

Kristie Lint)

Although I am new to the list, I want the Lint family to know that there are 
people out here that they don't even know who have Zion in their prayers 
daily!!!

Vicki Christensen

ps-and this holds true for all the updates I read about!!!

----- Original Message ----- 
From: "Corey & Dana" <coreydana@xxxxxxxxxxx>
To: "Tri-Med" <Tri-Med@xxxxxxxxxxxxx>
Sent: Tuesday, September 26, 2006 5:42 PM
Subject: [tri-med] Zion Lint Update 9-26-06


> Hello!
>
> Here is the latest update on Zion Lint...
>
> Angel blessing to all,
>
> Dana
> Auntie to Noah Thomas Campbell
> Partial Trisomy of 2p+
> October 10, 2000 - May 14, 2001
> ---------------------------------------------------------
> Dana Tehako-Esser
> President & Chief Executive Officer
> Noah's Never Ending Rainbow
> 7737 6th Avenue
> Kenosha, Wisconsin 53143
> Phone/  262.605.3690
> Business E-mail/  dana@xxxxxxxxxxxxxxxxxxxxxxxxxxx
> Personal E-mail/  coreydana@xxxxxxxxxxx
> Website/  www.noahsneverendingrainbow.org
> _______________________________________
> From: Family4RMH@xxxxxxx [mailto:Family4RMH@xxxxxxx]=20
> Sent: Tuesday, September 26, 2006 6:27 PM
> To: coreydana@xxxxxxxxxxx
> Cc: therese@xxxxxxxxxxxxxxxxxxxxxxx
> Subject: Re: Zion Lint - Special Messages
>
> Dana,
>
> These messages are so sweet--it brings tears to my eyes to see how many
> special people care for my baby.=A0 No, actually it brings a flood of =
> tears.=A0=A0
> I have sent a couple of updates in the last few days, not sure if they =
> went
> through or not.=A0 No one responded to the info in them, so I am =
> assuming you
> didn't get them.=20
> I know you received the one about how Zion had to be in a drug-induced =
> koma
> for 24 hours.=A0 They let the drugs wear off and he woke up on Friday
> afternoon.=A0 He was much calmer.=A0 And he was in a pretty good mood, =
> so I
> think all the pain meds he was on was helping.=A0=A0 Then that evening =
> when the
> dr came around to change the dressings, he noticed there was already
> infection draining out.=A0=A0 So, once again the incision had to be =
> reopened and
> drained.=A0 They were pleased because it was mostly old blood and little
> infection.=A0 So on Saturday, his white blood cell count came down some =
> and
> his fevers were down a little.=A0 He had a pretty good day.=A0 Then on =
> Sunday,
> he was in an awesome mood.=A0=A0 He was laughing and so happy.=A0 He =
> listened to
> his music and played with his toys and laughed.=A0 That evening, Jamie =
> noticed
> he had a messy diaper and I stepped out to get some more diapers from =
> the
> nurses.=A0 When I came in the room,=A0 Jamie had taken his blanket =
> off=A0 to
> change him and there was poop everywhere.=A0 So then I stepped out to =
> get some
> clean sheets and blankets.=A0 When I came in the room Jamie was crying =
> and
> wringing his hands and saying "this is not good--this is so bad."=A0 I =
> laughed
> and told him it was no big deal--we would get the nurse to help change =
> his
> bed.=A0=A0 He said "No, I don't mean that.=A0 I unfastened his diaper =
> and there
> was nothing in it.=A0 The poop did not come out his butt."=A0=A0 The =
> poop had came
> out of his surgical incision where it had been reopened and drained.=A0 =
> Even
> the nurse started crying and saying that this is really bad.=A0 They =
> called
> the dr in and he said that he is sorry and that there is nothing they =
> can
> do.=A0 So we spent all that night crying and telling him bye.=A0 He had =
> a bad
> night.=A0 His breathing was bad and his fever went really high again.=A0 =
> On
> Monday morning, the PICU Dr=A0 told us we could go ahead and take him =
> home.=A0
> The surgeon came in during the=A0 conversation with the PICU dr and said =
> that
> Zion's colon had a bad place on it and that he noticed it during=A0 =
> surgery.=A0
> He thinks that the "bad place" turned into a hole and the waste material =
> was
> coming out the hole in the colon and finding its way to the incision =
> site
> and coming out.=A0 The problem is what is not coming out the incision =
> site is
> leaking into his body and will soon poison his body.=A0 There really =
> isn't an
> answer, not even a suregery.=A0 The only ray of hope is that the surgeon =
> said
> that if most of the waste found its way out of the body, then he might =
> not
> get sick from it.=A0 But now we can't feed him through the j-tube or the =
> colon
> will keep leaking poop into his body.=A0 So they put him back on TPNs
> yesterday and told us we can take him home on them.=A0=A0 So we are back =
> to
> there is=A0 nothing we can do, but I can't starve him.=A0 So we=A0 are =
> taking him
> home tomorrow on TPNs.=A0 We have to wait till tomorrow because it took =
> that
> long to set it up to get TPNs delivered to our house.=A0 Without food =
> going
> through his intestines, there will be very little waste products.=A0 =
> They put
> a colostomy bag over the incision site to catch the poop, and we have to
> empty it.=A0 But that really isn't any worse than a dirty diaper.=A0 The =
> surgeon
> said that sometimes colons will heal themselves.=A0 When 2 weeks is up, =
> we
> will put him back on formula and hope the hole in the colon is healed up =
> by
> then.=A0 If so, then things should be okay.=A0 If not, then we will feed =
> him
> formula and use the bag over the incision site as a colostomy bag and =
> just
> hope and pray that none of the poop is leaking into his body, but there =
> is
> little chance that it will ALL come out the site.=A0 What leaks out will
> contaminate him.=A0 So we are waiting for 2 weeks to give the colon a =
> chance
> to heal.=A0 Zion does not heal well, so it will take a miracle from God, =
> but
> God has given Zion lots of miralcles before and I have no reason to =
> think
> that he won't this time.=A0 Zion's lungs are in bad shape, too.=A0 He is =
> off the
> C-pap but is on oxygen.=A0 So we will go home tomorrow on oxygen, TPNs =
> and
> with a colostomy bag and will wait and see what happens.=A0 His white =
> blood
> cell count was down yesterday but they didn't check it today.=A0 He =
> doesn't
> look that bad.=A0 He is alert and playing a little.=A0 He was able to =
> get up
> today and go outside in his wheelchair for about 15 minutes.=A0 He is =
> very
> swolen.=A0 He is huge.=A0 He came in here weighing 41 pounds and 2 days =
> ago he
> weighed 55 pounds.=A0 So you can imagine what 14 pounds of fluid makes =
> him
> look like. They said that it will gradually go away. But other than the
> swelling, his color is good and he hasn't cried any after this =
> surgery.=A0 He
> hasn't appeared to be in any pain whatsoever.=A0=A0 If it is meant for =
> Zion to
> go, then I pray he will not suffer.=A0 He is going home with IV access =
> and an
> order for morphine as needed.=A0 I will check my messages before we =
> leave the
> RMHouse tomorrow, and then I won't be able to check until I get my =
> computer
> fixed at home.=A0 Thank you all so much for the many lovely =
> messages--they
> kept me going. I would come straight to the computer room as soon as I =
> got
> here to check them.=A0 Thanks for the many prayers--keep them coming.=A0 =
> And
> thank you a bunch Dana.=20
>
> Kristie Lint
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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