[tri-med] Re: Zion Lint Update 9-26-06

Kristi and Jamie,
 Nicole and my thoughts and prayers are with you during this time of 
uncertianty, we just wnted ya'll to know that we are thinking about you guys 
and Zion, I know that God has Zion cradled in His wonderful healing arms.  We 
will continue to pray for all of you.

In Christ,

Allen and Nicole 

----- Original Message -----
From: Corey & Dana <coreydana@xxxxxxxxxxx>
Date: Tuesday, September 26, 2006 7:42 pm
Subject: [tri-med] Zion Lint Update 9-26-06

> Hello!
> 
> Here is the latest update on Zion Lint...
> 
> Angel blessing to all,
> 
> Dana
> Auntie to Noah Thomas Campbell
> Partial Trisomy of 2p+
> October 10, 2000 - May 14, 2001
> ---------------------------------------------------------
> Dana Tehako-Esser
> President & Chief Executive Officer
> Noah's Never Ending Rainbow
> 7737 6th Avenue
> Kenosha, Wisconsin 53143
> Phone/  262.605.3690
> Business E-mail/  dana@xxxxxxxxxxxxxxxxxxxxxxxxxxx
> Personal E-mail/  coreydana@xxxxxxxxxxx
> Website/  www.noahsneverendingrainbow.org
> _______________________________________
> From: Family4RMH@xxxxxxx [mailto:Family4RMH@xxxxxxx]=20
> Sent: Tuesday, September 26, 2006 6:27 PM
> To: coreydana@xxxxxxxxxxx
> Cc: therese@xxxxxxxxxxxxxxxxxxxxxxx
> Subject: Re: Zion Lint - Special Messages
> 
> Dana,
> 
> These messages are so sweet--it brings tears to my eyes to see how 
> manyspecial people care for my baby.=A0 No, actually it brings a 
> flood of =
> tears.=A0=A0
> I have sent a couple of updates in the last few days, not sure if 
> they =
> went
> through or not.=A0 No one responded to the info in them, so I am =
> assuming you
> didn't get them.=20
> I know you received the one about how Zion had to be in a drug-
> induced =
> koma
> for 24 hours.=A0 They let the drugs wear off and he woke up on Friday
> afternoon.=A0 He was much calmer.=A0 And he was in a pretty good 
> mood, =
> so I
> think all the pain meds he was on was helping.=A0=A0 Then that 
> evening =
> when the
> dr came around to change the dressings, he noticed there was already
> infection draining out.=A0=A0 So, once again the incision had to 
> be =
> reopened and
> drained.=A0 They were pleased because it was mostly old blood and 
> littleinfection.=A0 So on Saturday, his white blood cell count 
> came down some =
> and
> his fevers were down a little.=A0 He had a pretty good day.=A0 
> Then on =
> Sunday,
> he was in an awesome mood.=A0=A0 He was laughing and so happy.=A0 
> He =
> listened to
> his music and played with his toys and laughed.=A0 That evening, 
> Jamie =
> noticed
> he had a messy diaper and I stepped out to get some more diapers 
> from =
> the
> nurses.=A0 When I came in the room,=A0 Jamie had taken his blanket =
> off=A0 to
> change him and there was poop everywhere.=A0 So then I stepped out 
> to =
> get some
> clean sheets and blankets.=A0 When I came in the room Jamie was 
> crying =
> and
> wringing his hands and saying "this is not good--this is so 
> bad."=A0 I =
> laughed
> and told him it was no big deal--we would get the nurse to help 
> change =
> his
> bed.=A0=A0 He said "No, I don't mean that.=A0 I unfastened his 
> diaper =
> and there
> was nothing in it.=A0 The poop did not come out his butt."=A0=A0 
> The =
> poop had came
> out of his surgical incision where it had been reopened and 
> drained.=A0 =
> Even
> the nurse started crying and saying that this is really bad.=A0 
> They =
> called
> the dr in and he said that he is sorry and that there is nothing 
> they =
> can
> do.=A0 So we spent all that night crying and telling him bye.=A0 
> He had =
> a bad
> night.=A0 His breathing was bad and his fever went really high 
> again.=A0 =
> On
> Monday morning, the PICU Dr=A0 told us we could go ahead and take 
> him =
> home.=A0
> The surgeon came in during the=A0 conversation with the PICU dr 
> and said =
> that
> Zion's colon had a bad place on it and that he noticed it 
> during=A0 =
> surgery.=A0
> He thinks that the "bad place" turned into a hole and the waste 
> material =
> was
> coming out the hole in the colon and finding its way to the 
> incision =
> site
> and coming out.=A0 The problem is what is not coming out the 
> incision =
> site is
> leaking into his body and will soon poison his body.=A0 There 
> really =
> isn't an
> answer, not even a suregery.=A0 The only ray of hope is that the 
> surgeon =
> said
> that if most of the waste found its way out of the body, then he 
> might =
> not
> get sick from it.=A0 But now we can't feed him through the j-tube 
> or the =
> colon
> will keep leaking poop into his body.=A0 So they put him back on TPNs
> yesterday and told us we can take him home on them.=A0=A0 So we 
> are back =
> to
> there is=A0 nothing we can do, but I can't starve him.=A0 So we=A0 
> are =
> taking him
> home tomorrow on TPNs.=A0 We have to wait till tomorrow because it 
> took =
> that
> long to set it up to get TPNs delivered to our house.=A0 Without 
> food =
> going
> through his intestines, there will be very little waste 
> products.=A0 =
> They put
> a colostomy bag over the incision site to catch the poop, and we 
> have to
> empty it.=A0 But that really isn't any worse than a dirty 
> diaper.=A0 The =
> surgeon
> said that sometimes colons will heal themselves.=A0 When 2 weeks 
> is up, =
> we
> will put him back on formula and hope the hole in the colon is 
> healed up =
> by
> then.=A0 If so, then things should be okay.=A0 If not, then we 
> will feed =
> him
> formula and use the bag over the incision site as a colostomy bag 
> and =
> just
> hope and pray that none of the poop is leaking into his body, but 
> there =
> is
> little chance that it will ALL come out the site.=A0 What leaks 
> out will
> contaminate him.=A0 So we are waiting for 2 weeks to give the 
> colon a =
> chance
> to heal.=A0 Zion does not heal well, so it will take a miracle 
> from God, =
> but
> God has given Zion lots of miralcles before and I have no reason 
> to =
> think
> that he won't this time.=A0 Zion's lungs are in bad shape, too.=A0 
> He is =
> off the
> C-pap but is on oxygen.=A0 So we will go home tomorrow on oxygen, 
> TPNs =
> and
> with a colostomy bag and will wait and see what happens.=A0 His 
> white =
> blood
> cell count was down yesterday but they didn't check it today.=A0 
> He =
> doesn't
> look that bad.=A0 He is alert and playing a little.=A0 He was able 
> to =
> get up
> today and go outside in his wheelchair for about 15 minutes.=A0 He 
> is =
> very
> swolen.=A0 He is huge.=A0 He came in here weighing 41 pounds and 2 
> days =
> ago he
> weighed 55 pounds.=A0 So you can imagine what 14 pounds of fluid 
> makes =
> him
> look like. They said that it will gradually go away. But other 
> than the
> swelling, his color is good and he hasn't cried any after this =
> surgery.=A0 He
> hasn't appeared to be in any pain whatsoever.=A0=A0 If it is meant 
> for =
> Zion to
> go, then I pray he will not suffer.=A0 He is going home with IV 
> access =
> and an
> order for morphine as needed.=A0 I will check my messages before 
> we =
> leave the
> RMHouse tomorrow, and then I won't be able to check until I get my =
> computer
> fixed at home.=A0 Thank you all so much for the many lovely =
> messages--they
> kept me going. I would come straight to the computer room as soon 
> as I =
> got
> here to check them.=A0 Thanks for the many prayers--keep them 
> coming.=A0 =
> And
> thank you a bunch Dana.=20
> 
> Kristie Lint
> 
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: