[tri-med] Re: When do you stop a medication

I still think it is strange to give a child a new med in the hospital that 
she normally doesn't take or seem to need.
She wasn't throwing up in the hospital, so that wasn't why they were giving 
it too her... they just seemed to think she was under stress and it would 
keep her stomach settled... or maybe the addition of antib's and tylenol 
that her tummy would need it.
Still a bit confusing... but ancient history now.
 BTW... Claire is being considered for graduation from hospice. 
We will miss them dearly, and be welcomed back if she gets really sick 
again, but lately been responding so well to the antib's when she get's 
pneum that she's been outa the hospital for over a year! (knock on wood)... 
I hate sending good infor to you guys cause we always get jinxed with it... 
but sending anyway and taking my chances.
 Debbie, mom to Baby Claire (T18)
http://www.debbwebb.com/Claire/
Experience is something you don't get until just after you need it.
 On 5/29/05, Catherine Trewin <ctrewin@xxxxxxxxxxxx> wrote: 
> 
> Debbie, I am cleaning out my inbox (1500+ unread!) and reread you
> question....I am wondering what the GI has to say about your question. 
> Much
> of the damage done by reflux is invisible to us moms and I know that (on 
> the
> advice of the above) when we doubled Bec's Prevacid she was much more
> comfortable and as an added bonus have been able to completely stop using
> Senokot....Bec is verbal and is able to complain about such things as
> burning in her throat and nose though she seldom outright vomits she does
> have the preliminary gagging but has what I consider tremendous vomit
> control :) but then she has 30 years of practice at it. I wouldn't stop 
> any
> med without talking first with your dr....except for adverse reaction of
> course, (then you still contact the dr and see if another med will work
> without the side effects).
> I guess I should also add that sometimes...and I am not saying that is 
> what
> is going on in this case but sometimes a medication is stopped or not
> recommended by a dr because a patient is considered palliative and thus
> reducing the number of meds (in their opinion) equals improved quality of
> life.....staying away from examples of our precious kids.....when my dad
> (wide-spread cancer) was determined palliative the dr told us that we 
> could
> stop doing the daily finger pricks for his diabetes, which were causing my
> dad and those of us who had to do those to him considerable stress.....dad
> had at this point begun to refuse all of his meds and clearly felt that
> those finger pricks were nothing short of torture! Life was better for him
> in that case. This is the reason some surgery is withheld as well as some
> meds. Hope I haven t confused the issue for you but just needed to add 
> this
> perspective.
> 
> Catherine, mom of Becky 30 (Trisomy 13 Mosaic)
> 
> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx
> [mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Debbie
> Sent: Monday, May 23, 2005 9:35 AM
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: When do you stop a medication?
> 
> 
> When Claire was in the hospital last (a year ago) they put her on an
> antacid/antigas med. I asked why, and they just mumbled something about it
> helping her out with an upset stomach. They gave it to her regularly
> throughout the day. Once we were back home, I never gave it to her again.
> She didn't throw up during her hospital stay, so it was more a comfort
> measure. Anyone else have that happen to them. I watch her meds like a 
> hawk,
> and this seemed more like just giving her a simple antacid, so I didn't
> argue with them over it... and any comfort measure I was all for!
> She was throwing up last week, a lot, but it was because of congestion, so 
> I
> never thought to give her something for reflux - did give her coca cola 
> tho.
> Each throw up contained some 'slime' that was obviously bothering her. So 
> we
> kept feeding her and every now and then she cough, cough, gag, throwup 
> (all
> over me typically - when will I learn?)... and she was much better over 
> the
> weekend. I learned after some coughing to take the edge of a cloth diaper
> and 'swab' the inside of her cheeks and often brought out some of her
> flem... otherwise, she'd just swallow it -- not knowing any different.
> Okay, this isn't exactly what you want to read over breakfast, but it is
> the nature of the beast.
> Debbie, mom to Baby Claire (T18)
> http://www.debbwebb.com/Claire/
> Experience is something you don't get until just after you need it.
> 
> 
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org <http://www.trisomyonline.org>
> Families Helping Families On-line
> 
> 


-- 
Time flies when your having rum.
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the 
impossible!

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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