[tri-med] Re: When do you stop a medication?

Debbie, I am cleaning out my inbox (1500+ unread!) and reread you
question....I am wondering what the gastroenterologist has to say about your
question. Much of the damage done by reflux is invisible to us moms and I
know that (on the advice of the above) when we doubled Bec's Prevacid she
was much more comfortable and as an added bonus have been able to completely
stop using Senokot....Bec is verbal and is able to complain about such
things as burning in her throat and nose though she seldom outright vomits
she does have the preliminary gagging but has what I consider tremendous
vomit control :) but then she has 30 years of practice at it. I wouldn't
stop any med without talking first with your dr....except for adverse
reaction of course, (then you still contact the dr and see if another med
will work without the side effects).
I guess I should also add that sometimes...and I am not saying that is what
is going on in this case but sometimes a medication is stopped or not
recommended by a dr because a patient is considered palliative and thus
reducing the number of meds (in their opinion) equals improved quality of
life.....staying away from examples of our precious kids.....when my dad
(wide-spread cancer) was determined palliative the dr told us that we could
stop doing the daily finger pricks for his diabetes, which were causing my
dad and those of us who had to do those to him considerable stress.....dad
had at this point begun to refuse all of his meds and clearly felt that
those finger pricks were nothing short of torture! Life was better for him
in that case. This is the reason some surgery is withheld as well as some
meds.  Hope I haven t confused the issue for you but just needed to add this
perspective.

Catherine, mom of Becky 30 (Trisomy 13 Mosaic)

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx
[mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Debbie
Sent: Monday, May 23, 2005 9:35 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: When do you stop a medication?


When Claire was in the hospital last (a year ago) they put her on an
antacid/antigas med. I asked why, and they just mumbled something about it
helping her out with an upset stomach. They gave it to her regularly
throughout the day. Once we were back home, I never gave it to her again.
She didn't throw up during her hospital stay, so it was more a comfort
measure. Anyone else have that happen to them. I watch her meds like a hawk,
and this seemed more like just giving her a simple antacid, so I didn't
argue with them over it... and any comfort measure I was all for!
She was throwing up last week, a lot, but it was because of congestion, so I
never thought to give her something for reflux - did give her coca cola tho.
Each throw up contained some 'slime' that was obviously bothering her. So we
kept feeding her and every now and then she cough, cough, gag, throwup (all
over me typically - when will I learn?)... and she was much better over the
weekend. I learned after some coughing to take the edge of a cloth diaper
and 'swab' the inside of her cheeks and often brought out some of her
flem... otherwise, she'd just swallow it -- not knowing any different.
 Okay, this isn't exactly what you want to read over breakfast, but it is
the nature of the beast.
 Debbie, mom to Baby Claire (T18)
http://www.debbwebb.com/Claire/
Experience is something you don't get until just after you need it.
 On 5/22/05, loganfamily <loganfamily@xxxxxxxxxxxxx> wrote:
>
>
> -----Original Message-----
> From: Loren Warnemuende <lorenwarn@xxxxxxxxx>
>
> On Friday, May 20, 2005, at 07:23 PM, Therese Ann wrote:
>
> > Hi Loren,
> > I'm not a big fan of Reglan, so if you can get off it great,
> > Although, after getting off it, if you find she is having problems
> > with just the Zantac....I am a HUGE fan of Prevacid for antacid.
>
> Mari is on both Reglan & Zantac. I can't say that I feel like it "solves"
> her problem. Mari's "reflux" sounds a bit like Keren's.....seems to be
more
> snot or saliva related that typical reflux.
>
> During her hospital stay for pneumonia the staff had her on prevacid. I
> asked her GI doc about switching to prevacid. (A GI doc in Chicago during
> the SOFT conference was also a fan of prevacid, but Mari wasn't old enough
> for it then---as I understood no studies on the effects in younger
> children.)
>
> Anywho, Mari's GI doc said that he has read some recent studies that
> prevacid may be linked to more frequent pneumonias. He felt like Mari has
> only had the one pneumonia....so let's not mess with it just yet.
>
> Just our two cents worth...
>
>
>
> Chris (mama to Mari, full T18, dob 8/24/01)
> Tipp City, OH 45371
> http://pg.photos.yahoo.com/ph/misstippcity/my_photos
> http://home.earthlink.net/~loganfamily/id1.html
> http://www.benotafraid.net/story.asp?id=38
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org <http://www.trisomyonline.org>
> Families Helping Families On-line
>
>


--
Time flies when your having rum.
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the
impossible!

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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