[tri-med] Re: What do you do - feeding pump broke at night!
- From: "Irene Smith" <irene67@xxxxxxxxxxxx>
- To: <tri-med@xxxxxxxxxxxxx>
- Date: Fri, 29 Apr 2005 21:10:36 -0400
It is scary when you have no good way to feed your child and it is the
middle of the night. We have been pump feeding Caroline for 1 1/2 yrs
without any broken pump/power outage problems yet, until last night. It was
terrible. I barely sleep now as it is due to being in the last stages of
pregnancy, so the thought of getting up all night for bolus feeds sounds
overwhelming. Luckily, Apria had a new pump to us by this afternoon. I
will hope lightning won't strike twice. Apria also has an after hours
answering service and someone on call over the weekends so I would assume if
this happened again, we would still be able to get a pump by the next day no
matter what day of the week is was.
I was thinking of asking Apria what their "expert" opinion is on this issue.
My mom was a nurse in her earlier days and she is adamant that gravity feeds
should be no problem, it just takes some work until you learn how to do it.
I don't know if Apria nurses have any advice, but I will check it out next
week. I don't mind bolus feeds during the day....but at night?? Yikes!
Thanks to all!
Irene
(Christina -3 y.o, Caroline - born 6/28/03 with partial trisomy 17p, AND
baby #3 due 6/16/05)
http://www.babiesonline.com/babies/c/carolinerochelle
----- Original Message -----
From: "Debbie" <debbwebb@xxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Friday, April 29, 2005 6:41 PM
Subject: [tri-med] Re: What do you do - feeding pump broke at night!
> Don't know about feedings like you moms do, but a battery and even a
> generator wouldn't do much good if the pump was just plain broken... what
> a
> scary thought to not be able to feed your child! Esp if it late at night
> on
> a weekend. Would kids just have to do without if there was not other type
> of
> feeds that worked?
> Sorry, no advice here, just questions.
> You guys are very special in my book.
> Debbie, mom to Claire (t18 2yo)
> http://debbwebb.com/Claire/
> On 4/29/05, Loren Warnemuende <lorenwarn@xxxxxxxxx> wrote:
>>
>> What a pain! I don't have very good advice--just commiseration. The
>> few times that we've done gravity feed (once right after Keren got her
>> g-tube, and once during the big blackout the other year) we had the
>> same problems you had. It sounds like a common problem. I'd say your
>> solution of small and frequent boulos feedings is about the best for
>> meantime.... Just not all night!!!
>>
>> Loren (wife to Kraig, mom to Keren, T18, two years old (9/27/02), and
>> new little one due 7/13/05)
>> Southeast Michigan
>> http://webpages.eng.wayne.edu/~ad6075
>>
>> On Friday, April 29, 2005, at 08:22 AM, Irene Smith wrote:
>>
>> > Last night, after just putting Caroline to bed, her feeding pump
>> > broke. I
>> > had just gotten a new pump since our old pump was due for a
>> > calibration. We
>> > were so furious and unsure of what to do. After about an hour of
>> > fussing
>> > around, we tried a gravity feed. However, we really had no clue HOW
>> > to do a
>> > gravity feed. When we woke up in the middle of the night, she had
>> > barely
>> > gotten any food at all. My husband bumped up the rate of drops a
>> > little
>> > (who knows how much) and in the morning, we still had a ton of food
>> > left
>> > over. She ended up getting about 1/2 (maybe less) of her usual feed.
>> >
>>
>> Building ___ooOOoo__ Rainbows
>> www.trisomyonline.org <http://www.trisomyonline.org>
>> Families Helping Families On-line
>>
>>
>
>
> --
> Time flies when your having rum.
> Sleep is for Pansies.
>
> Faith sees the invisible, believes the incredible and receives the
> impossible!
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
>
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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- From: Irene Smith
- [tri-med] Re: What do you do - feeding pump broke at night!
- From: Loren Warnemuende
- [tri-med] Re: What do you do - feeding pump broke at night!
- From: Debbie
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- [tri-med] Re: What do you do - feeding pump broke at night!
- From: William Heisler
- [tri-med] What do you do - feeding pump broke at night!
- From: Irene Smith
- [tri-med] Re: What do you do - feeding pump broke at night!
- From: Loren Warnemuende
- [tri-med] Re: What do you do - feeding pump broke at night!
- From: Debbie