[tri-med] Re: What do you do - feeding pump broke at night!

>Don't know about feedings like you moms do, but a battery 
>and even a generator wouldn't do much good if the pump was 
>just plain broken... what a scary thought to not be able to 
>feed your child! Esp if it's late at night on a weekend. 
>Would kids just have to do without if there was no other 
>type of feeds that worked? Sorry, no advice here, just 
>questions.

Debbie, 

No, not as long as Mom's energy holds up...

Bolus feeds are always an option, as long as the tube is in
and not blocked. And I keep new g-tube sets around at all times
for emergencies...one in my car trunk, one in her room, and 
even one in the side pocket of her suitcase currently.  Even if
you don't have REAL bolus sets, you can always use a bag and 
tubing meant for a pump fed, and just gravity it in by hand...
btdt too in a pinch. But the tubing is narrower, so it's a lot
slower process. Kind of reminds me of "the good old days"...NOT,
when feeding her with a bottle was an all day, every day, effort.
And even if you don't have a bag, but you've got the tubing, the 
cap on it will screw onto a standard baby bottle.
  
Fawna, mom to Philina 22yrs (PT6p & Moya Moya Syndrome), & 
research coordinator for Tracking Rare Incidence Syndromes 
(TRIS) Project http://home.mindspring.com/~fawna33/




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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