[tri-med] Re: Well...we finally have some answers

 
Devon sounds like a hoot!!!!!!! 

Karen, JUlians grandma


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From:  "Penny Victor" <pvictor@xxxxxxxxxx>
Reply-To:  tri-med@xxxxxxxxxxxxx
To:  <tri-med@xxxxxxxxxxxxx>
Subject:  [tri-med] Re: Well...we finally have some answers
Date:  Sun, 12 Aug 2007 16:54:26 -0400
>Hi Barbara...right back atcha!!!
>Well...we tried a CD player before but Devon doesn't like just any kind
head
>phones...VERY picky. We noticed that he will wear those big clunky Princess
>Leah looking head phones at school to listen to stories...he refuses to
wear
>the little ear buds, or the smaller head phones or the behind the ear
>kind...believe me...we've tried them all!!! He WILL however tolerate the
>Koss or Sony or Maxell ones that have the "noise cancellation" big Princess
>Leah head phones with the soft leatherette cushioned ear pieces that
>completely go around the outer shell of his ears. I would do anything to
>keep him happier when we take him to doctors or stores...or anywhere where
>we need to take his mind off sitting in his stroller or me making him hold
>my hand :o) I can't take credit for the idea but I sure did run with it
when
>she suggested it!!! It was Megan (his behavior therapist) that suggested
the
>Shuffle. Nick was funny...he was like, " but mom...the Shuffle only holds
>about 250 songs!!!". He has a Nano that holds more than that. But Devon's
>tastes are simple...he likes bear, hand clapping songs and hard rock and
>hard core alternative...the more chaotic the better :o) Anyway...Nick has
>been finding and loading the songs for us :O) He's a pretty good judge of
>what Devon likes...but if he's not sure he asks us :o) Devon's got lots of
>Sean Paul, Black Eyed Peas, Christina Aguilera's "Candy"...things like that
>:o) We're still looking for Green Jelly's hard core version of "The Three
>Little Pigs". It's funny really...if you ever find it to listen to...it
>sounds like a very angry young man yelling, "LITTLE PIG! LITTLE PIG!...LET
>ME IN!!...NOT BY THE HAIR OF MY CHINNY CHIN CHIN!!!! Devon just falls all
>over himself smiling and laughing!!!! I can't help thinking that he
>remembers the elementary graduation assembly where he took part in the
>entertainment. They did a kind of funny bluesy sort of rap version of the
>Three Little Pigs!!! He wore Stevie Wonder dark glasses with a pig snout
>attached and short blue jean overalls :o) It was adorable!!!!! My face hurt
>I smiled so much...cried a little too...I was so proud of my little pig!!!
>He gets so excited he just can't stand or sit still when he hears something
>that REALLY pleases him...he starts clapping and flexing his legs and
>bouncing like a fool!!!!
>
>Love,
>Penny...loving &devoted wife to Joe, the best husband in the world...mom to
>Nick (16 yrs old...lover of Fishing, Dragons, Turtles, Blue Collar Comedy
>Tour, RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (12
>yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Elmo, &food in
>general. Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper
>the Wonder Dog...our 10? year old yellow lab adopted from FL Lab Rescue
>12/13/02 :o) Please visit the webpage my wonderful friend Karen made for me
>on our trisomy listserv at:
>http://www.trisomyonline.org/victor.html
>AND...see our Trooper on FL Lab Rescue's website at:
>http://www.labradorrescue.net/success/index.html (Look for the name
>Trooper...page 4 or 5 right now) AND :o)
>http://livingwithtrisomy13.org/album9.htm
>AND http://web.coehs.siu.edu/Grants/TRIS/
>"Faith sees the invisible, believes  the incredible &receives the
>impossible"
>
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>


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Now you can see trouble?before he arrives[1] 

--- Links ---
   1 http://g.msn.com/8HMAENUS/2749??PS=47575
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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