[tri-med] Re: We Need Volunteers For A Rare Trisomy Parent Advocacy Panel In Washington DC (Oct '03)

so we really couldnt bring the kids?  i dont think kels could watch this
many kiddos (even tho she is the BEST sitter ever.)

seems like the registry brings examples of their kids when they go to dc for
stuff.
i will email you off list with details as i am still interested.
jude, mom to derek-16, kelsey-14 and
kameron-5-full trisomy 18
golden, colorado usa
http://chromosome18.org/stories_trisomy.htm#Wolpert
http://www.trisomyonline.org/wolpert.htm
http://home.attbi.com/~jfwolpert2
----- Original Message -----
From: "Fawna Lockwood" <fawna33@xxxxxxxxxxxxxx>
> Bringing the kids:  This is a perfect example of one of those
> mind boggling problems we have with educational & medical
> professionals who see our kids a few hours per day, and
> then send them home for us to deal with till the next time,
> but think they could do a better job of raising them.  Unlike
> the SOFT Conference who understands our unique life style,
> The Council for Exceptional Children don't, so they have no
> arrangements for childcare for attendees.  However, if Jude
> does come and brings Kels, maybe she would like to watch the
> kids during the presentation.  A little creative paperwork,
> and my sitter service hours would even reimburse me for paying
> her for it.  And maybe anyone who wants to do more of the
> conference we could work out a child care exchange plan?



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