Hi Susan - I am pleased to have a good report on special schools - I do
believe I have to try before I make a decision and have asked the principal
if I can sit in on a couple of the classes. You have given me a bit of
positivity. Matilda is the most beautiful little princess, cheeky as all get
out and her smiles gets her everything! She is only just learning to sit up
and roll over but doing extremely well and very proud of herself. As a
family we just have fun and laugh lots we have always accepted Matilda as
Matilda - she just happens to have a disability that makes her special. I
have had it said to me that I am not accepting of the situation and I think
that is because I don't allow it to stress me and I can make jokes about
it - just like this morning when we went out for coffee and Matilda sat
there with her tongue hanging out making terrible verbal noises, I just told
her to behave herself and stop being disabled - she gave me a smile and
behaved herself, we all had a giggle at her cuteness (I think this is what
"professionals" call not accepting of the situation!) Oh well, we'll wait
until they are in our situation before we take their comments seriously!
I love the name Rebecca - what is she up to physically? Do tell me more.
Catherine, wife to Richard, mum to Matilda 4 (T18) and Tom 2
----- Original Message -----
From: Glenn&Susan Hardy <hardyboys@xxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Sunday, January 26, 2003 1:13 PM
Subject: [tri-med] Re: We Need Volunteers For A Rare Trisomy Parent Advocacy
Panel In Washington DC (Oct '03)
>
>
>
>
> >>>>>>>>>Hey Jude, I have emailed you before about my beautiful princess
> Matilda - I
> am very confused about her schooling and what to do with her and your
> email
> caught my attention - does Kam go to a special needs school? I'm not
> eager
> to send Matilda to our local special needs school because I tend to
> think it
> could be just a baby sitting service not a place of education. Matilda
> yearns for so much and is so eager to learn. We are just in the process
> of
> learning about conductive education and it's benefits - has anyone else
> had
> experience with this??<<<<<<<<<<,
>
>
> Welcome Catherine and glad you found us, I would love to hear more about
> your daughter. My reason for being here is my daughter Rebecca who is 11
> 1/2 yrs old and has T18 m ( although a small percentage of normal cells,
> 7 0r 9 percent) re: schooling, Rebecca went to regular JK and SK, in
> grade one the school wanted to send her to the special needs class in
> another school ( here in Ontario Canada the special needs classes are in
> certain schools) any way this is really the plan I had anyway as I did
> not feel that straight academics would be her strong point. She is
> technically in grade 5 although by age she should be in grade 6 (I held
> her back a year)
> For Rebecca the special Ed class is the way to go. She gets PT and OT
> from the EA's who have the experience that an EA in a regular class
> would not. She loves her class and the teacher works on the goals I
> want. She is integrated into a kindergarten class for certain subjects
> and really loves school.
>
> Susan mom to Rebecca t18m age 11 1/2
> Ontario Canada
>
>
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
>
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line