[tri-med] Re: We Need Volunteers For A Rare Trisomy Parent Advocacy Panel In Washington DC (Oct '03)

Hi Michelle and thanks for the welcome - I must say I feel like I have
walked into a big party and lots of conversations are going on and I feel a
bit rude butting in !  I live on the Central Coast of NSW and they are not
very open to having special needs kids mixed into the schools, only 1 in our
area does it and you have to be pretty good to get in - Matilda is
considered too high special needs and too high medical needs because of her
peg.  If we were to move 1 hour up north (wine country....yummy) then they
have fantastic services for the disabled and all public schools welcome the
special ones.  But to sell house and move is a pretty big thing, especially
when Richard works in Sydney, an hour south of where we live.  I'm not sure
what Sydney is like, but I know it is far too expensive for us to afford to
buy a house!!!!!!  I think I have mastered a plan for Matilda for this year
and then we'll see what happens the following year.  I don't think I could
begin to explain what Conductive Education is exactly - but it's FANTASTIC
and here is a couple of website for you to check out
 www.conductive-education.org.uk
http://members.tripod.com/conductive_education/

Catherine, wife to Richard, Mum to Matilda 4 (T-18) and Tom 2


----- Original Message -----
From: Michelle Waite <jwaite@xxxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Saturday, January 25, 2003 2:01 AM
Subject: [tri-med] Re: We Need Volunteers For A Rare Trisomy Parent Advocacy
Panel In Washington DC (Oct '03)


>
>
> ----- Original Message -----
> From: "Richard Carlick" <rcmtcarlick@xxxxxxxxxxxxxx>
> - I
> > am very confused about her schooling and what to do with her and your
> email
> > caught my attention - does Kam go to a special needs school?  I'm not
> eager
> > to send Matilda to our local special needs school because I tend to
think
> it
> > could be just a baby sitting service not a place of education.  Matilda
> > yearns for so much and is so eager to learn.  We are just in the process
> of
> > learning about conductive education and it's benefits - has anyone else
> had
> > experience with this??
>
> Hi and Welcome Catherine!
>
> My son is 15 and his diagnosis is partial trisomy 14 mosaic. He's been in
> general education with special education support all along.
>  However, we're in the USA and since you're in Australia I'm sure the
> programs are different. Rarely are children here put into special needs
> schools as mainstreaming/inclusion is mainly done. Most of the US triers
on
> the list have been receiving support services (OT, PT, speech etc) and/or
> schooling from their local school district from birth or shortly
thereafter.
>
>  Karen is the only Aussie on the list with a school aged child (or at
least
> the only one who posts regularly) so she might be a good bet for what
Aussie
> standards and options are available.
>
> What do you mean by "conductive education"?
>
> Looking foreword to getting to know you and Matilda better!
> Michelle mom to Alex (15,partial trisomy 14 mosaic) and Molly (12)
> MichiganUSA
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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