[tri-med] Re: We Need Volunteers For A Rare Trisomy Parent Advocacy Panel In Washington DC (Oct '03)


Fawna
I would be more than happy to volunteer, Jakes reletivly high functioning,
but with the double dose of chromo disorders, I think ranks on the rare
list!!  And you would think that would get him some services he needs...
(but, I don't think anyone wants to hear that rant right now!!)  I am self
employed, so my availability is most definatly there for ya, and DC isn't a
bad drive for us.  Just tell me if you all will need my loud mouth there (no
problem with the public speaking bit!) and I will plan it.

Amanda, wife to James.  Mom to Jake (Partial Tri 9 and Kleinfelters
Syndrome) 11-16-96 and Joey 2-19-02 along with two corgis, Rose and Drew.
Kentucky, USA

'Faith makes it possible, not easy'

amandawilson@xxxxxxxx

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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