Dear Larry,
I think this was the idea that SOFT (Support Organisation For Trisomy 18/13
and related disorders) had when they first started the conferences by
holding medical clinics in the hospitals of the city where the conference is
held they are trying to bring awareness of T18/13 and other rare trisomies
to the local medical communities in the hope that they will share this with
their colleagues. Fawna and some of the others on the list are speaking at
a conference this year to bring awareness to the medicos. And some of the
drs that are on the su[pport team of SOFT Dr Carey and Dr Showalter have
gone to the hospitals during conference and spoken on treating children with
T18/13 etc. This is all great stuff and just sharing your story can help to
make people aware that T18/13 and other trisomies are out there and that our
kids are loved and wanted and can make a contribution to society in their
own way.
"Life is like a box of chocolates, you never know what you're gonna get!"
Forrest Gump's mother.
"Don't worry about the world coming to an end today. It's already tomorrow
in Australia"
Charles Schultz.
Tracey RN/CM <///><, Mum to Jennie 15, Louise T18 (in heaven July 2nd 1990),
Jono 11, Jesse 9, Jimmy the angel dog, Millie the magnificent (Dogus
Ecstaticus), Pippa the perfect (puppius perfecticus) and most grateful wife
to David my soulmate and best friend.
Bobs Farm, NSW, Australia
Homepage - www.geocities.com/cuddlefishtoo/index.html
Our God Reigns
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Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line