[tri-med] Re: Videosof Kids?/ Input requested/Annie/coroner/conference

Barb, we have a video of Morghan climbing the stairs.  Would that work?

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx]
On Behalf Of Barbara Farlow
Sent: 07/08/2008 8:24 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Videosof Kids?/ Input
requested/Annie/coroner/conference

HI Chris,

You have given me an idea.=20

Given what exists in most medical text books about tri 13/18, many
doctors are absolutely ignorant about the possibilities. For example, in
our "wonderful" public health care system, there is a picture of a
stillborn child severely afflicted with tri 13 and a proboscis that was
placed alongside a picture of a cyclops and this was used to educate
physicians on the importances of directing women who show signs of
carrying a 'defect' to the genetic centres...fast.=20

I have shown many people the movie of Mieko with her walker and they are
amazed.=20

I wonder if anyone might want to send me a video clip of their child to
dispel the notion that these kids live a life of suffering? I could put
them together and show them on my laptop to geneticists or ethicists who
express an interest.=20

Barb


> Date: Mon, 7 Jul 2008 22:02:57 -0400
> From: loganfamily@xxxxxxxxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: Input requested/Annie/coroner/conference
>=20
> -----Original Message-----
> >From: Jennifer Vanderbeek <phil46@xxxxxxxxxxxx>
> >Subject: [tri-med] Re: Input requested/Annie/coroner/conference
> >
> >Barb,
> >
> >Annie's story should live on in CAPITAL LETTERS & BOLD TYPE for the
world to
> >hear & see!  Annie had as much right to live as any other baby born.

> >My answer to the question of why health care dollars should be spent
on
> >children with a shortened lifespan:
>=20
>=20
> Barb,
> I totally agree with Jennifer.  I'm wondering if there is a Trisomy
18/13
> child who lives close enough to the Seattle Children's Hospital to
join
> you.  That's the week of the SOFT conference, but perhaps someone is
> available?
>=20
> I bring Mari, but she's scheduled for surgery on July 30th.
>=20
> Best Wishes,
>=20
>=20
> Chris
> wife to Pat, mama to Dalton 16yo, Darby 13yo, McKensie 12yo, and Mari
6yo (full T18, dob 8/24/01 & The only one who always likes me....unless
I'm trying to wipe her nose or brush her teeth!)
> Tipp City, OH  USA
>=20
> http://www.benotafraid.net/story.asp?id=3D38
> http://web.coehs.siu.edu/Grants/TRIS/
> www.trisomyonline.org
> www.trisomy.org
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>=20

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                  Building ___ooOOoo__ Rainbows
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                  Families Helping Families On-line

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