[tri-med] Re: Utah/Colorado peeny

Hi Gina :o)
Devon is on Medicaid and we were told Medicaid would actually buy one for
him but we needed a specialized evaluation done to submit with very specific
worded letter of medical necessity in order for them to consider providing
it. We were all excited as an appointment was made for Shands in Gainseville
(2 hours away). Devon's case nurse AND I both called 5-6 times between the
two of us to double and triple check that they actually DID do the kind of
eval we needed. In a very tired/bored/condescending tone I was told
repeatedly that "yes, Mrs. Victor...we do these every day." I took off from
work and we drove the 2 hours each way trip with Devon...only to be taken
into a room and told that they do not do these types of evals there. To say
I went ballistic would have been an understatement...and then I got very
depressed about the whole thing :o( I was so filled with rage that I was
shaking like a leaf and crying at the same time...I managed to rip them a
new orifice while telegraphing how very angry we were. That at least was a
little cathartic.
I went to Enable Mart Technology for Everyone online and found the one with
8 pictures and 12 levels for 650$ or 675$...plus a rechargeable battery
option for another 98$...and we'll need the Board Maker software as
well...which I think is 300$?? I'm in the process of trying to get funding
for it...so wish us luck :o) I'm not sure why the one you're looking at is
costing so much although I know there were some more expensive than the one
we want. There are other devices that cost in the thousands but just not
realistic for us to hope to get that much funding for it.

Love,
Penny...loving & devoted wife to Joe, the best husband in the world...mom to
Nick (16 yrs old...lover of Fishing, Dragons, Turtles, Blue Collar Comedy
Tour, RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (11
yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Elmo, & food in
general. Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper
the Wonder Dog...our 10? year old yellow lab adopted from FL Lab Rescue
12/13/02 :o) Please visit the webpage my wonderful friend Karen made for me
on our trisomy listserv at:
http://www.trisomyonline.org/victor.html      
AND...Devon's moment of glory in Exceptional Parent Magazine...
http://www.eparent.com/familiarfaces/ffaces_4_01.htm
AND...see our Trooper on FL Lab Rescue's website at:
http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
AND :o) http://livingwithtrisomy13.org/album9.htm
AND http://web.coehs.siu.edu/Grants/TRIS/
"Normal people worry me"
 

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Gina Anderson
Sent: Sunday, January 28, 2007 2:09 PM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: Utah/Colorado peeny

 the teacher or i will program it. taylor it so well on the one at thay 
showed me. he know to go back to the begin to go  to what he wanted. the 
only thing is its not a toy and taylor loved it. my insurnce is paying for 
it and  his medical is paying for it. it will come home. gina son taylor p.s

it will take time to get . gina son  taylor triosmy 8 mosaic
----- Original Message ----- 
From: <TRIER9@xxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Sunday, January 28, 2007 1:00 PM
Subject: [tri-med] Re: Utah/Colorado peeny



Tech talk......hmmm...never saw that one. Brianna just got the Lightwriter.
The school won't let her take it home since we won't sign the agreement to 
be
liable for the cost of it if it breaks while at home. This just not seem
right?  How do I know it was not dropped at school before it came home????

Laurie
Mom to Bri w/trisomy 9p

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

ies On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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