[tri-med] Re: Using your "quote" from the eating apples thread.

On Saturday, October 29, 2005, at 05:04 PM, Karen wrote:

> We know that
> there is no cure - we HAVE accepted that our kids are different 
> (despite
> what they may think - we can accept this and not go around crying all 
> day
> everyday), But that doesn't mean that they can't learn, develop and 
> improve
> in what they do. They do all day every day - it just takes a little bit
> longer.........
>


RIGHT ON!!!!!
Karen, I'm going to copy this and use it at our next IEP on NOV 4th....
Our fight seems to be she is cognitively low...so they don't feel she 
should get specific services and I feel, if she's low than give them to 
her and lets see where she''ll go...at least for this year...and the 
last two years, they certainly didn't do us any favors  with her 
program.

My daughter is in no way talking....But  the last week, I have heard 
three vocal sounds that sound pretty appropriate for the situation and 
the time I heard them...I get so excited...only to not hear them 
again...
"DRINK"
"HOLD ME"
"PICK UP"

When Natalia was about two I had a list of about 15 words/sounds that 
were appropriate for the situation...and then some shots, 
surgeries...and nothing...We've gotten some real good humming of tunes 
to 1-4 songs, yet the only consistent word is MA-MA--
I was sharing this with someone recently ,  and now to hear her come up 
with these sounds is really exciting...We have a long long way to go 
but every little change in growth excites me...

ThereseAnn

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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