[tri-med] Re: Urgent - Natural History

----- Original Message ----- 
From: "David & Tracey Pass"
> sorry Karen I only have hard copies.
> and it's probably too late now is it?
> I could scan them

I finally found the natural history ones on my hard drive, not the cardiac 
one though, only the Atlanta article, so if you could scan that I would be 
grateful.
It is too late for today, I was just actually thinking that the appointment 
should be over now, but I would appreciate having them to give them in the 
next few days. I just hope that all went well and that the surgeon has 
agreed to operate. I will give them a call later to find out, in the 
meantime I am praying, sending positive vibes and all the good kharma I can 
muster from the universe believe me.

For everyones info this mum contacted Ronnie after the TV show last week and 
he looped her back to me. The irony is that the family only live a suburb 
away. The dad actually works just up the road!! Actually their whole 
situation is cosmically similar to mine. They have two teens and this 
"unexpected" pregnancy after being told she couldn't have any more children. 
They are living a street away from where I lived with Alex when he was a 
baby....... spooky twilight zone music. And I mean what are the odds of the 
mum watching an obscure documentary on the ABC which had nothing at all to 
do with babies to hear T-18 mentioned and then living so close?!?!

The doctors have told them that there are no surviving children anywhere and 
are refusing to operate on the baby. (where have I heard that before) They 
even refused to do a c-section but the family have finally convinced them to 
do that at least. (the babies problems are such that mum will have to have 
to have a c-section if the baby is to survive the birth and she will also 
need surgery within the first few days - non cardiac) So I have sent them 
off to an appointment with a surgeon armed to the teeth with stories and 
pictures of our Aussie kids, Savannah, Krystal, Matilda, Sarah, Melissa etc 
etc and of course all our international lads and lasses as well as copies of 
Smith's, various articles and all the T-18 books. They touched and wished 
upon all my foot and hand prints too............

If this doctor doesn't work then I have already spoken to a couple of 
general surgeons who I can put the family in touch with. I even spoke with a 
thoracic surgeon just in case. Though the good news on that front is that 
they can no longer say that no T-18 baby has ever had heart surgery, we have 
broken that horrid record with a little one in Melbourne and another in 
Brisbane thank goodness. Not to mention Alex....... but then he is mosaic 
<evil grin> which is an excuse that suits them when it suits them only.

So if you can spare a thought or prayer I know that they will appreciate 
it!! Michelle? Chris? do you have Earth Mommas phone number? (off list) This 
little one has similar issues.......

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (12 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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