[tri-med] Re: Ups and Downs

Hi Laurie, I am sorry that I have no answer for you, but I am sending you 
some peace of mind and will be thinking about Brianna.

Michelle Wilson, mother to Faren and wife to Rick


>From: TRIER9@xxxxxxx
>Reply-To: tri-med@xxxxxxxxxxxxx
>To: tri-med@xxxxxxxxxxxxx
>Subject: [tri-med] Ups and Downs
>Date: Fri, 28 Sep 2001 21:25:44 EDT
>
>Content-Type: text/plain; charset="US-ASCII"
>Content-Transfer-Encoding: 7bit
>
>Hello everyone,
>I'm not sure is this email is even going to go through, but I need to write
>to you all....at least for therapeutic reasons..
>My little girl had a dexa scan this week and her results are back. Her
>pediatrician called today and says he does not know what to do next.
>He read the results to me over the phone, but I did not absorb much. I did
>get that she is at significant risk for bone fractures. I'm just sick, to 
>say
>the least.
>He says IF she has osteoporosis in her hip and spine (this is where they
>tested), then she most probably has it throughout her body. :(
>I''ve cried so hard today, my head is throbbing and I'm slightly 
>hysterical,
>but can anyone give me any information on this? I know our kids are at risk
>for bone problems and that some of our children have lost their ability to
>walk in their teen years. Please, anyone...please chime in her and let me
>know what I should do next.
>Thanks so much-Always!
>
>P.S. for those of you following Brianna's inability to sweat effectively
>issue, we now have a diagnosis. It is called Ectodermal
>Dysplasia(spelling?)...I'll write more later on this one if anyone would 
>like
>to know more....
>Laurie
>Mom to Brianna age 12 with Trisomy 9p/21
>
>
>
>
>
>-- Attached file included as plaintext by Listar --
>
>Return-Path: <9Tips@xxxxxxxxxxxxxxxx>
>Received: from  rly-za02.mx.aol.com (rly-za02.mail.aol.com [172.31.36.98]) 
>by air-za04.mail.aol.com (v80.17) with ESMTP id MAILINZA49-0928183428; Fri, 
>28 Sep 2001 18:34:28 2000
>Received: from  challengenet.com (www.challengenet.com [204.96.24.169]) by 
>rly-za02.mx.aol.com (v80.21) with ESMTP id MAILRELAYINZA22-0928183357; Fri, 
>28 Sep 2001 18:33:57 -0400
>Received: from [192.168.1.102] by challengenet.com with POP3; Fri, 28 Sep
>  2001 17:29:03 -0000
>To: 9Tips@xxxxxxxxxxxxxxxx
>From: TRIER9@xxxxxxx
>Date: Fri, 28 Sep 2001 18:31:31 EDT
>Subject: 9TIPS:Ups and Downs
>Message-ID: <132.24701c5.28e65443@xxxxxxx>
>X-Mailer: AOL 6.0 for Windows US sub 10536
>MIME-Version: 1.0
>Content-Type: multipart/alternative;
>  boundary="part1_132.24701c5.28e65443_boundary"
>Content-Transfer-Encoding: 7bit
>Reply-To: "9Tips" <9Tips@xxxxxxxxxxxxxxxx>
>Sender: <9Tips@xxxxxxxxxxxxxxxx>
>Precedence: Bulk
>
>
>--part1_132.24701c5.28e65443_boundary
>Content-Type: text/plain; charset="us-ascii"
>Content-Transfer-Encoding: 7bit
>
>Hello everyone,
>I'm not sure is this email is even going to go through, but I need to write
>to you all....at least for therapeutic reasons..
>My little girl had a dexa scan this week and her results are back. Her
>pediatrician called today and says he does not know what to do next.
>He read the results to me over the phone, but I did not absorb much. I did
>get that she is at significant risk for bone fractures. I'm just sick, to 
>say
>
>the least.
>He says IF she has osteoporosis in her hip and spine (this is where they
>tested), then she most probably has it throughout her body. :(
>I''ve cried so hard today, my head is throbbing and I'm slightly 
>hysterical,
>but can anyone give me any information on this? I know our kids are at risk
>for bone problems and that some of our children have lost their ability to
>walk in their teen years. Please, anyone...please chime in her and let me
>know what I should do next.
>Thanks so much-Always!
>
>P.S. for those of you following Brianna's inability to sweat effectively
>issue, we now have a diagnosis. It is called Ectodermal
>Dysplasia(spelling?)...I'll write more later on this one if anyone would 
>like
>
>to know more....
>Laurie
>Mom to Brianna age 12 with Trisomy 9p/21
>
>
>
>--part1_132.24701c5.28e65443_boundary
>Content-Type: text/html; charset="us-ascii"
>Content-Transfer-Encoding: 7bit
>
><HTML><FONT FACE=arial,helvetica><FONT  SIZE=2>Hello everyone,
><BR>I'm not sure is this email is even going to go through, but I need to 
>write to you all....at least for therapeutic reasons..
><BR>My little girl had a dexa scan this week and her results are back. Her 
>pediatrician called today and says he does not know what to do next.
><BR>He read the results to me over the phone, but I did not absorb much. I 
>did get that she is at significant risk for bone fractures. I'm just sick, 
>to say the least.
><BR>He says IF she has osteoporosis in her hip and spine (this is where 
>they tested), then she most probably has it throughout her body. :(
><BR>I''ve cried so hard today, my head is throbbing and I'm slightly 
>hysterical, but can anyone give me any information on this? I know our kids 
>are at risk for bone problems and that some of our children have lost their 
>ability to walk in their teen years. Please, anyone...please chime in her 
>and let me know what I should do next.
><BR>Thanks so much-Always!
><BR>
><BR>P.S. for those of you following Brianna's inability to sweat 
>effectively issue, we now have a diagnosis. It is called Ectodermal 
>Dysplasia(spelling?)...I'll write more later on this one if anyone would 
>like to know more....
><BR>Laurie
><BR>Mom to Brianna age 12 with Trisomy 9p/21
><BR>
><BR></FONT></HTML>
>
>--part1_132.24701c5.28e65443_boundary--
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>


_________________________________________________________________
Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: