[tri-med] Re: Ups and Downs


----- Original Message -----
From: <TRIER9@xxxxxxx>
> My little girl had a dexa scan this week and her results are back. Her
> pediatrician called today and says he does not know what to do next.

Why does he not know what to do next? With the finding he has what is the
typical course of action now?

> I''ve cried so hard today, my head is throbbing and I'm slightly
hysterical,
> but can anyone give me any information on this?

{{{{{{{{{Laurie}}}}}}}}}  I am SO very sorry for you all.

What is the name of the disorder? That would go a long way to finding
information. Might even be some specific support groups for it.



> Please, anyone...please chime in her and let me
> know what I should do next.

If it's an osteoporosis/bone fragility issue I'd think maybe a gerontologist
might be someplace to go. Yes, it's generally a specialist for the elderly
but they are experts on the bone/osteoporosis issues. I'd give that a try.
Also, orthopedics might be an avenue since they deal with issues of the
bone.

Michelle mom to Alex (14,partial trisomy 14 mosaic) and Molly (10)
MichiganUSA

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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