[tri-med] Ups and Downs

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Hello everyone, 
I'm not sure is this email is even going to go through, but I need to write 
to you all....at least for therapeutic reasons.. 
My little girl had a dexa scan this week and her results are back. Her 
pediatrician called today and says he does not know what to do next. 
He read the results to me over the phone, but I did not absorb much. I did 
get that she is at significant risk for bone fractures. I'm just sick, to say 
the least. 
He says IF she has osteoporosis in her hip and spine (this is where they 
tested), then she most probably has it throughout her body. :( 
I''ve cried so hard today, my head is throbbing and I'm slightly hysterical, 
but can anyone give me any information on this? I know our kids are at risk 
for bone problems and that some of our children have lost their ability to 
walk in their teen years. Please, anyone...please chime in her and let me 
know what I should do next. 
Thanks so much-Always! 

P.S. for those of you following Brianna's inability to sweat effectively 
issue, we now have a diagnosis. It is called Ectodermal 
Dysplasia(spelling?)...I'll write more later on this one if anyone would like 
to know more.... 
Laurie 
Mom to Brianna age 12 with Trisomy 9p/21 





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Hello everyone,
I'm not sure is this email is even going to go through, but I need to write 
to you all....at least for therapeutic reasons..
My little girl had a dexa scan this week and her results are back. Her 
pediatrician called today and says he does not know what to do next.
He read the results to me over the phone, but I did not absorb much. I did 
get that she is at significant risk for bone fractures. I'm just sick, to say

the least.
He says IF she has osteoporosis in her hip and spine (this is where they 
tested), then she most probably has it throughout her body. :(
I''ve cried so hard today, my head is throbbing and I'm slightly hysterical, 
but can anyone give me any information on this? I know our kids are at risk 
for bone problems and that some of our children have lost their ability to 
walk in their teen years. Please, anyone...please chime in her and let me 
know what I should do next.
Thanks so much-Always!

P.S. for those of you following Brianna's inability to sweat effectively 
issue, we now have a diagnosis. It is called Ectodermal 
Dysplasia(spelling?)...I'll write more later on this one if anyone would like

to know more....
Laurie
Mom to Brianna age 12 with Trisomy 9p/21



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<HTML><FONT FACE=arial,helvetica><FONT  SIZE=2>Hello everyone,
<BR>I'm not sure is this email is even going to go through, but I need to write 
to you all....at least for therapeutic reasons..
<BR>My little girl had a dexa scan this week and her results are back. Her 
pediatrician called today and says he does not know what to do next.
<BR>He read the results to me over the phone, but I did not absorb much. I did 
get that she is at significant risk for bone fractures. I'm just sick, to say 
the least.
<BR>He says IF she has osteoporosis in her hip and spine (this is where they 
tested), then she most probably has it throughout her body. :(
<BR>I''ve cried so hard today, my head is throbbing and I'm slightly 
hysterical, but can anyone give me any information on this? I know our kids are 
at risk for bone problems and that some of our children have lost their ability 
to walk in their teen years. Please, anyone...please chime in her and let me 
know what I should do next.
<BR>Thanks so much-Always!
<BR>
<BR>P.S. for those of you following Brianna's inability to sweat effectively 
issue, we now have a diagnosis. It is called Ectodermal 
Dysplasia(spelling?)...I'll write more later on this one if anyone would like 
to know more....
<BR>Laurie
<BR>Mom to Brianna age 12 with Trisomy 9p/21
<BR>
<BR></FONT></HTML>

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