[tri-med] Re: Update on Jackson
- From: Jocelyn <jknowd@xxxxxxxxxx>
- To: tri-med@xxxxxxxxxxxxx
- Date: Sat, 21 Feb 2009 16:27:24 +1100
That's great that you can rule out reflux, it can make their lies a misery.
At 02:11 AM 21/02/2009, you wrote:
>Hi all!
>
>We did the bronchoscopy and they didn't find anything except
>evidence of reflux. We'll continue on the Prevacid. I asked about
>the calcium absorbtion issue and was told that most of the studies
>done were on old ladies in nursing homes who don't get enough
>vitamin D or sun exposure. They think it's OK for short term use for J.
>
>The general theory though, is that he just need to grow and get that
>airway bigger. There's been no more talk about an airway
>reconstruction, which I'm very relieved about.
>
>J did have a really hard time recovering after the procedure. They
>gave him a racemic epi and some IV steroids. They almost kept us
>overnight, but in the end they decided we could go since we live so
>close to the hospital and the meds had really improved his
>breathing. I'm so glad that's over!
>
>Hope all is well with everyone!
>
>Wendi, mom to Jackson trisomy 4p, inverted duplication, 4 1/2 and
>Jameson 13 months.
>www.microwavesrectanglesandellen.blogspot.com
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
>
>
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>02/19/09 18:45:00
Jocelyn, wife to Frank, Mother to Ian, Gillian and Susan, Nanna to
Carly 21 Mathew 20, Ashleigh 19, Alex 16, and Tess (Trisomy 18,)
age 12 yrs, & Benny the Maltese, plus one amazing DIL and two
amusing SIL's of whom I'm very fond, and their extended family who
are too many to list here.
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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