[tri-med] Re: Unique Newsletter

Yeah, unfortunately, we can't share the magazines unless the person is 
already joined with Unique, in which case they should already have it.  I 
know it can be frustrating, but we have to respect other peoples privacy - 
there are other stories in the newsletter that may not wish to have their 
story shared with anyone but those from Unique.  I know it can be 
frustrating - I have wanted to share stories as well.  Possibly, if you are 
part of Unique, you may be able to get ahold of Unique to see if that 
particular person would mind if you shared just their story.  That's always 
a possibility, too.


>From: ghulce@xxxxxxxxxx
>Reply-To: tri-med@xxxxxxxxxxxxx
>To: tri-med@xxxxxxxxxxxxx
>Subject: [tri-med] Re: Unique Newsletter
>Date: Wed, 8 Aug 2007 18:40:49 -0000
>
>
>so you our telling me i can'nt send her the story on the lady that
>has triosmy 8 mosaic gina
>---- Original Message ----
>From: kimihlenfeldt@hotmail=2Ecom
>To: Tri-Med@freelists=2Eorg
>Subject: [tri-med] Unique Newsletter
>Date: Wed, 08 Aug 2007 10:37:29 -0500
>
> >
> >Just an FYI for everyone=2E  In regards to the Unique newsletter, we
> >are not=20
> >supposed to share those with other people for confidentiality
> >reasons=2E  If=20
> >someone would like to read a newsletter, you would actually need to
> >sign up=20
> >to become part of Unique=2E  I double checked with Unique, and that is
> >the=20
> >info they shared with me=2E  If you would be interested in becoming a
> >part of=20
> >Unique, I can give anyone the website address to sign up=2E  Sorry to
> >be such=20
> >a pooper, but we have to protect/respect the privacy of others=2E=20
> >Thanks=2E
> >
> >
> >
> >Kim Ihlenfeldt, husband Kerry (complex balanced translocation 9, 15,
> >and 18=20
> >chromosomes), son Cameron 8 (same genetics as Dad), Cayden T-18
> >(12-16-02 to=20
> >01-16-03), and Candace 1 (Partial Trisomy 18 and Partial Trisomy 15)
> >
> >=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=
>=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=
>=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F
> >A new home for Mom, no cleanup required=2E All starts here=2E=20
> >http://www=2Ereallivemoms=2Ecom=3Focid=3DTXT=5FTAGHM&loc=3Dus
> >
> >                  Building =5F=5F=5FooOOoo=5F=5F Rainbows
> >                       www=2Etrisomyonline=2Eorg
> >                  Families Helping Families On-line
> >
> >ies On-line
> >
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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